Mind the Gap, How Common Medical Symptoms Appear on Dark Skin

Me and Claire who I haven’t heard from in a very long time got talking about last year. From the covid19 pandemic, to the vaccine, systematic racism and to trypanophobia. It was during that conversation mind the gap was mentioned.

I had never really imagined or thought the images and books medical students might be learning from, may not have people with dark skin. Meaning an unbalance in the treatment of dark skinned people simply because of education.

Simple things like finding veins which are relatively easy to see under white skin can be challenging under black skin (generally). There were other aspects which I hadn’t ever thought about…

This where mind the gap came up… from the root

A Zimbabwe-born medical student living in London is filling in an important blind spot in the medical community: informing healthcare providers and patients how symptoms for a broad range of conditions appear on darker skin.

It’s the kind of problem that feels shockingly outdated for the 21st century, but as 20-year-old St. George student Malone Mukwende recently told the Washington Post, the lack of teaching about darker skin tones, and how certain symptoms would present differently on nonwhite skin, was obvious by his first class at the University of London school.

“It was clear to me that certain symptoms would not present the same on my own skin,” Mukwende told The Post, referring to conditions like rashes, bruises, and blue lips. He quickly extrapolated that the same would be true of other people sharing similarly dark skin.

Malone Mukwende
Malone Mukwende

If this was dated in the 80’s I would understand but Mukwende started the book which is free to download in 2020!

Shocking but so glad of the solution, although its worth noting there is things missing from the book where you could help.

Publicspaces conference #1 towards a common internet – March 11-12th

How can we achieve public spaces on the internet?

On March 12, 2021, PublicSpaces, Pakhuis de Zwijger and Waag are organizing a conference to save the internet.

This event will happen mainly in a virtual form of course, however there might be something in person in Amsterdam’s Pakhuis de Zwijger. The conference will make up part of the Mozilla Festival 2021, also in Amsterdam and mainly virtual currently.

Of course I will be organising, joining the conference and the pre-conference on the evening of the 11th March (more details will come soon)

Conference 2021

The internet is broken, but we can fix it and replace broken parts. In this conference we will look for ways how we can make the internet a healthy public space again. With a day program for professionals from the public sector looking for a way out of big tech, and for developers of alternative systems for a safe, open and fair internet. We conclude the day with a talk show for everyone about the dangers of the current model, but also the concrete possibilities for a future internet without surveillance capitalism, and with healthy alternatives that we can use immediately.

Together we answer the impossible question: how do we create a public space on the internet?

Mark it down in your calendars… and expect more details soon.

Replacing Mixcloud with Funkwhale

Funkwhale mixes

For a long while I have been threatening to leave Mixcloud in favour of hosting my own mixes. I looked around and thought funkwhale looks great as its a federated network for music. With some help from JonT, I started to scrape the metadata I stupidly forgot to keep for myself.

I installed Funkwhale on the Yunoserver but spent too much time trying to work out how to mount my NAS on the Yunoserver. I gave Navidrome but  decided it wasn’t right as there was no way to listen without logging in, so went back to Funkwhale and got things up and running.

Seems Funkwhale might not be the best solution for the mixes, plus the developer is looking for new maintainers recently. Its really setup for single tracks not mixes. I could upload mixes but my plan to use cue files, won’t work. The only place to put playlists is in the comments. I also need to do more digging as I can’t change the year of the mixes. More importantly, the public sharing is a bit broken for me. You should be able to listen to the radio but its not working for me

Funkwhale profile

As I get my head around it all but you can subscribe via RSS and if you’re using Mastodon or other fediverse applications, you can subscribe to this account: @digitalitalicmixes@mixes.cubicgarden.info.

Enjoy, I’m one step closer to self hosting my mixes.

Why there is still an need for public telephones?

Red phone boxes

I found Jon Udell’s blog about public telephones funny but also quite telling of so much more.

Public infrastructure is important for so many reason including for equality.

If you take the telephone as communication infrastructure and apply that same thinking to the internet infrastructure. You see a clear rationale for public wifi, public internet kiosks at public libraries, etc – Yes and also the systems which surround it. This rules out the likes of Facebook free basics, which isn’t a public service.

Interestingly the public phone is also somewhat anonymous. Data is collected once used like where the call is coming from at what time, etc; but you don’t need to register first to use them or sign in to use them. Each of the companies setup to deliver these public infrastructures have a aim of coverage not profits (or they should). There might be legitimate and less-legitimate times when you want this, but this is a choice you can make, rather than be forced into.

These all seems so obvious if you live in a country which encourages public service but worth pointing out. Plus I’m focused on the notion of a public service internet.

 

Learn the Diabolo during a pandemic?

Glad someone else did a video about learning the Diabolo during the pandemic. Its something I have really enjoyed and look forward to when ever I can.

Here’s my advent calendar of Diabolo tricks for example.


The shared reasons…

  1. The Diabolo is good physical exercise
    Weirdly enough, I’m doing roughly about 3500+ steps while with the Diabolo for 45mins. The big difference is my heart rate, its raised during the Diabolo and thats a good thing.
  2. The diabolo is good mental exercise
    Its a good distraction and being in a state of flow while doing a trick is great. Like others, I’m doing it with headphones on, so able to listen to some of my trance mixes (haven’t done any recently) to get into a zone.
  3. Its the perfect social distancing device
    Especially when learning the vertex, can’t tell you the amount of times I almost lost the Diabolo over the fence or its ended up in a bush. Its part of the reason why I use one for practice and the more expensive one for the camera.
  4. Its not a expensive device, but you can pay a lot for better
    Talking about Diabolos, I have a lot of them. Some going back to when I was in college and a bunch of triple axis bearing Diabolos. Even considered a fire Diabolo. The sticks are also worth a thought. Originally I had quick thick wooden sticks then they got thinner before switching to aluminium and now carbon fibre is my style.
  5. Its fun and rewarding
    The benefits of fun are well known but theres also side effects like amazing hand eye coordination, agility and of course style.

Even if you are not convinced about the diabolo, consider the devil sticks, yoyo, hoops, poi or heck just juggling.

VPRO documentary: How did Brexit happen?

Brexit: The Uncivil War
The UK left the EU on January 1 2021, big ben chimed and there were fireworks at 2300 on December 31st in some places.

There are so many things I have said and want to say but I found the VPRO (Dutch public service broadcaster) really worth watching.  As always its good to see Brexit from the view of our neighbours.

Good documentary, hard to watch but very fair leaning on Brexit: civil war, the horrible class divide in the UK, the lies of the Boris bus, targetted advertising, the problems with nostalgia, etc..

 

Snowfall rolling into Manchester time-lapse

I knew Snow was coming so I setup my Pixel2 to best capture the snowfall on Saturday 2nd Jan 2021. It was good but I didn’t position the camera behind my black out blinds and so you get a slight reflection and later in the video the light of living room in the sky (I obviously removed this part as it looked weird). I also need to sort out the autofocus next time.

Still a nice timelapse of the clouds rolling in then the snow for a short while.

Public Service Internet monthly newsletter (Jan 2021)

Snowdon tells us we can fix the internet for all

We live in incredible times with such possibilities that is clear. Although its easily dismissed, hearing how much Salesforce have spent on Slack, the news about Solarwinds and Airbnb’s IPO (why exactly?)

To quote Buckminster Fuller “You never change things by fighting the existing reality. To change something, build a new model that makes the existing model obsolete.

You are seeing aspects of this emerging with Snowdon telling us its possible to fix thingsthe Economist’s look to 2021, this inspiring list of books of hope and the final end of proprietary Adobe Flash.


The Solid project hits a mile stone in development

Ian thinks: Following BBC R&D’s new forms of value, one of the key research aims is using personal data stores. Solid is one such personal data store and its hit a mile stone with a number of different partners.

The ODI Summit 2020

Ian thinks: The ODI’s summits are always full of great talks and discussions. This years virtual summit is no exception with talks ranging from how we collaborate across border (perfectly timed as the UK leaves the EU) to Elizabeth Denham on who decides how we can use data.

The 3rd way: liberalism, Europe and a antivirus for the mind

Ian thinks: Yuval Noah Harari’s speech about the state of liberalism and Europe is worth listening to even if the panel is less so. Its a German conference but the subtitles help, while Yuval speaks in English throughout. His points are strong and worth remembering, especially the Netflix one.

Nicer businesses reap the bigger rewards

Ian thinks: A good summary of different businesses which operate in a more human fashion and the benefit they gain from this approach. Doesn’t include the usual B-corp names like Ben & Jerry’s and Patagonia.

Has your local Coop been tracking you and fellow shoppers

Ian thinks: We hear so much about this happening elsewhere, not your local supermarket. Although its adopted a closed loop system, there’s still questions about the bias set in the algorithm being used.

Facebook is another US Corp avoiding EU privacy laws around UK data

Ian thinks: Brexit has far reaching ramifications, but many didn’t foresee their personal data being moved to American law. First Google and now Facebook. Look out for more in the new year.

The nation state as a subscription?

Ian thinks: It was during a conversation with the Future Today Institute about my Estonian e-residency and potential digital nomad visa. Than the notion of a subscription to nation states was considered a possible future. Might seem strange but its clear the idea of a nation state is overdue a change.

TechCrunch editors choose their top stories of 2020

Ian thinks: I found the choice of stories quite different and varied for 2020. I imagine every other year previously in Techcrunch would be much less focused on the effect of technology on society.

The biggest hacks of 2020

Ian thinks: Hearing the numbers of affected people increasing as Shannon gets closer to number one, is just unbelievable. I expected Solarwinds to be number one but yes number one is absolutely deserved. So clear how integrated the digital & physical are.

The future of social media, content moderation and censorship with the EFF

Ian thinks: Good honest discussion with EFF on topics affecting the internet right now. On a similar vein, you may also like a podcast Manchester Futurists recorded with Derek Caelin too.

Some things to take forward into 2021

Ian thinks: Lets be honest 2020 was a awful year, but there was lots of good things within the year which do need to be remembered and taken forward into 2021.


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