Tag: twitter

Gender diversity on twitter?

Results of who I follow on twitter

I rarely read twitter due to the API changes which I’ve talked about in the past. But I saw Teknoteacher talking about changing his followers after reading about Male tech CEOs follower accounts. I thought I’d share some things I discovered too. Especially reading this a while back.

So my results are above, using the online tool – https://www.proporti.onl.

But a while ago I used Open Human’s twitter archive analyzer by Bastian Greshake Tzovaras. It was super sobering!

Here is my replies by gender from when I first started using Twitter back in 2017. As you can see there was a massive spike of conversation with males in 2012, I also generally talk to more men than women on twitter.

My replies & gender Likewise when retweeting based on gender its mainly males. Recently its a lot closer to 50% which is great but I wonder with my lack of twitter use, how that will effect things? (I have requested a new update of my twitter data)

My retweets & genderOf course my instant thought is there is noise in the figures as its not always clear if people are male or female for many reasons. But its disappointing to read Elon Musk’s tweet.

And read about others such as…

Sundar Pichai, the CEO of Google, follows 267 accounts on Twitter. Of those, 238 appear to be men. He follows nearly as many Twitter Eggs (15) as women (21).

Satya Nadella, Microsoft CEO, followed the most women (39) of any of the accounts examined by the Guardian, though that is still half the number of men he follows (78) out of a total of 165 accounts.

I’d really like to see this applied to race not just gender too. It reminds me how I was going to learn more Python so I can create this as a Juno personal notebook in Open Humans.

Updated…

I updated Open Humans with my latest Twitter data export and here are the results.
Once again very sobering to see. Got to make some changes.

Screenshot of replies for 2019

Worth adding from TwArχiv site.

The graph shows you the number of replies to Twitter users that are classified as either male or female. The classifications are predictions based on users’ first names as given in their Twitter accounts. The predictions itself are performed by the Python package gender_guesser . It uses name/gender-frequencies from a larger text corpus. mostly male, mostly female, andy and unknown classifications are ignored. To decrease the noise the daily values have been averaged by a daily average over a 180 day window (dataframe.rolling('180d').mean()).

Ideally these graphs would include non-binary folks. Doing this is a bit trickier. It is thus a work in progress.

Screenshot of retweets for 2019Also worth mentioned…

Even more interesting than whether replying to people might be gendered can be the question which voices are being amplified . On Twitter a good indicator of amplification are retweets. These can be gender balanced or show biases, similarly to the replies to other users.

The graph shows you the number of retweets to Twitter users that are classified as either male or female. The classifications are again predictions made by the Python package gender_guesser . To decrease the noise the daily values have again been averaged by a daily average over a 180 day window (dataframe.rolling('180d').mean()).

Ideally these graphs would include non-binary folks. Doing this is a bit trickier. It is thus a work in progress.

The horizon dating experiment on TV again…

Horizon dating

It was Valentines day a little while ago and while I was busy. I guess someone at the BBC thought it would be a good idea to put up the Horizon Dating Experiment again.

I got a whole bunch of people asking me if they saw me on TV recently… Well yes you did and there is a story worth reading behind it all. I’m not the only one who blogged about it too. To be fair it all started with Rachel Clarke who pointed it out the call to me after my bad experience with the Year of making love.

Horizon dating experiment

To be fair although its back on Telly again, the best example of where the Horizon dating experiment popped up has to be on a plane at 36000 feet. Found via my good friend Claire

Back of a airplane seat

 

Maybe it really time to drop twitter…

Dead twitter

I use to use Corebird on my laptop for twitter access. Today this was broken and with a quick search found a page explaining all.

As many of you may know, Twitter decided to remove the UserStream API, which many third-party clients use, including Corebird. It’s a vital part of the user experience and is used for real-time timeline updates, DM retrieval, mentions, etc.

The replacement is the Accounts Activity API. I have not looked much into its details since the technical difficulties are enough to make it virtually impossible for me to port Corebird to it, but what I know is that real-time tweet updates aren’t supported and the prices are well beyond what I could possibly pay (“$2,899 per month for 250 users”).

Now, there would be a few ways out, of course. Porting to the Accounts Activity API is off the table, but other protocols exist. Since Corebird has never been anything else than a Twitter client, there is no abstraction for the Twitter API however, so porting to another protocol will be a lot of work again. Since I’m not a student anymore, I can’t promise to do any of that work. The master branch is additionally in a very WIP state with the ongoing GTK4 port and a bunch of other features.

The API removal will take place mid-August, so Corebird will mostly stop working at that point. I do not know of any real alternative that is not twitter.com of course.

If this explanation was too convulted, http://apps-of-a-feather.com/ has one as well.

I’d like to thank everyone who helped me over they years and all the patrons on here especially for all the support.

Seriously… I’m so very very close to dropping twitter, as although I benefited greatly from it in the past. They seriously have over stepped the mark and my alternative Mastodon is growing massively. I already stopped cross posting to Facebook after their decision to drop automated posting.

As Twitter falls a part is it time to double down on Mastodon?

Dead twitter

Twitter is seriously getting up to no good.

Its super clear the openness of twitter is being stopped, told to stand against a wall with hands up and then shot in the head. Its not good and frankly, I don’t know about you but its starting to pee me off. I recently posted something to my facebook timeline about Facebook’s decision to stop automated posting under a persons account. Another frustrating thing as I was practising the POSSE method from the IndieWeb movement..

Facebook is no longer allowing automatically post to peoples profile. Meaning this timeline is going to get very quiet!
If you want to catch up with things check out www.cubicgarden.com and www.twitter.com/cubicgarden

Because of this my facebook interactions are mainly going to be checking my events including Volleyball training.

All this makes me think its time to double down on Mastodon? Of course I’m not the only one thinking this, cue Adrian and Naomia‘s mastodon 101 podcast.

The more I look at the more I think close my twitter account and just use Mastodon. Although the crossposter was helping till Twitter API changes broke that too.

It will be a shame to say goodbye but the more I see what twitter is about and see what Mastodon users are doing like listing the abuses/hate/rule breaks in different Mastodon instances into Github. I think this is the place to be and the whole setup/framework/infrastructure is what makes it all this possible. Heck with a bunch of the new W3C specs like Webmentions,  Fragmention and Micropub; I can see companies which enable/power their users really making amazing sustainable humane services.

Lessons from Starfish & the Spider, lets make a better internet together!

Best rollercosters I’ve ridden, so far…

Jetline at Grona Land

I make no secret of my love for Rollercoasters, heck some call me a rollercoaster nerd?

I can trace back where it comes from but I just feel so alive when faced with the moment of impeding doom. Going around and doing it again and again, is exciting too. You get to feel the adrenaline rush and understand what the coasters design and imprecate it fully from different ride positions. On that topic, I’m a back seat rider. The pull of the coaster and the intensity is just amazing. Its a real shame when you are placed somewhere in the middle.

The rollercoaster geeks like me, tend to use some online resource to keep a eye on new coasters and where to head next. I found rcdb.com is great for this. I have considered hacking up a self quantified/tracking system like trakt.tv to capture how many times you have been on a certain ride, when and maybe which position. Instead I keep a track in my head while in the queue and post it to twitter…

For example from Copenhagen’s Tivoli Gardens

And from Stockholm’s Grona Lund

Theres a better way to do this i’m sure… I started wondering if my aspersions to do something with Mastodon or Micropub & Microformats, could fit with this too? Terms look ok too if its a free app, shame theres no api but the pages are simple enough to turn into a large xml store or what ever.

It could recommend stuff to you and you can start to pick out unique elements which you like or don’t like. In the my case looking through my rides I really hate Vertical Chain Lift Hill’s like you see on Abismo. They are trying to be too clever and actually feel really crap and short for me to enjoy.

Anyway a project for another day…

So with that out the way, here’s my top rollercoasters across the places I have been.

United states

Déjàvu

Six Flags great America

Vertical Velocity or V2

Deja Vu (no longer exists)

Raging Bull

Its funny because I have been to many parts of America but not really seeked out rollercoasters, so the main ones are in Vegas and Six Flags great America near Chicago. Six Flags is typical of a American theme park with lots of rides packed into a space. There were lots of choices for coasters but V2 and Deja Vu caught me, when I could stand the long queues. Raging bull was nice too but was less keen on the restraints, likely now I’d be cool with them.

Las Vegas

Speed: The ride (no longer exists)

Massive fan of LIM (Linear Induction Motor) and Hydraulic Launchs, so speed the ride is right up my street. I’d also add it was the best ride on the Vegas strip by a long way.

Japan

Steel Dragon 2000 at Nagashima

Nagashima Spa Land

Steel Dragon 2000

Spa Land is one of the best parks I have been to. Its large but not Alton Towers trek around the park size. Within the park is lots of rides including a bunch of thrill and extreme rides. However the crown of Spa Lands is Steel Dragon 2000, which hits a top speed of 95mph on the way down its almost 95 meter first drop (5th highest in the world currently) Then theres a 75 meter hill and drop straight afterwards. Thats higher than the whole of Blackpool’s Big One (62 meters drop). At almost 4mins for a ride, its still the longest track in history and the gravitation force over the hills is insane! There is nothing like it and it eclipses everything else in the park.

Fuji-Q Highland

Eejanaika

Fujiyama

I went to Fuji Q after Nagashima Spa Land and although its got some great coasters, I think I preferred Spa Lands. Fuji Q’s big ride at the time was Takabisha but I wasn’t convinced by it. Felt similar to Saw the ride in Thorpe Park (another one I was so-so about). I did like Do-Dodonpa but after going on Stealth lots of times, this felt poor in comparison. I noticed they changed the hill into a loop now, which might be better but at the time it was a hill.

Tokyo Dome City

Thunder Dolphin

If I could build a rollercoaster, I would do it like Thunder Dolphin. Right in the middle of a city but go big. The Dolphin is a rare surprise but it shuts early due to noise I expect? Its quite thrilling riding through a city centre in this way and quite special.

Spain

Parque Warner Madrid 126

Parque Warner Madrid

Superman / la Atracción de Acero

Stuntfall

Parque Warner Madrid, is a great park. Its not massive but they nicely grouped all the big rides close to each other for easy access to other ones. The theme nature of the park was good and very late opening really helps space out the day. The only thing is its quite a long way out of Madrid which means a coach or car only. The park is packed with rides but the two selected are the best. Stunt drop is just so much fun while Superman is as close to Steel Dragon 2000 as I’ve gotten in recent times.

UK

Alton Towers in 2015

Alton Towers

Nemesis

Smiler

Out of all the theme parks, this is the most visited one. I like Alton Towers but its estate is vast making repeat rides tricky. For example; the distance between Smiler and Nemesis in time is at least 15mins by cable cart! Walking would be 20-30mins. However the number of extreme rides are plentyful. The SW (Secret weapon) series of coasters have been record breaking and a genuine joy to have in the UK. Nemesis for me is still the best inverted coaster I have been on. Its quite insane its 22 years old and hasn’t lost its roar and intensity. Its the reason why (almost) all other inverted coasters don’t appear in my list at all. Even Batman the ride although similar lacks the landscape which features so much in Nemesis. Nemesis is basically cut into the side of hill to keep it below the treeline. You can see similar with the Smiler which isn’t tall but super compact crossing over its self many times. I would include Oblivion and Air but they have fallen out of my ride book in recent times.

Thorpe Park

Stealth

Swarm

Thorpe park is a nice park and its small enough to quickly get high numbers of rides in a short time. Although it doesn’t have enough big rides in my opinion. I use to have a merlin year pass which meant I could go to Alton Towers & Thorpe Park over and over again. So on a long week in London, I would head to Thorpe Park on Friday or Saturday with my luggage then get the tube back to Euston for my train back to Manchester.

Blackpool pleasure beach

Infusion

The Big one

Blackpool is so close and unlike most UK theme parks, opens late. Its got some good rides but I haven’t been on the new Icon ride yet.

Drayton Manor

Shockwave

Its been a long time since I took a ride in Drayton Manor, but I won’t forget Shockwave which is one of the only stand up rollercoasters in the UK.

Sweden

Jetline at Grona Land

Gröna Lund

Insane

Jetline

Grona Land isn’t a thrill seekers paradise but its small opens late and you can easily run around to the entrance of each ride really easily. Jetline was surprisingly old skool but also had quite exciting elements including the out and back via a tunnel. Its also quite a smooth ride at the start. Insane is a winged insane coaster, even I had to take it easy after the 11th time. Its the first time I have been in a ball coaster and after a few breaks, quite enjoyed it.

Denmark

Dæmonen

Tivoli Gardens

Dæmonen

To be fair Tivoli Gardens isn’t really a extreme roller coaster park, but the one ride they do have is like a mini Superman / la Atracción de Acero. Same maker and coasters, just much shorter time and much less extreme.

Why a code of conduct matters

Paul Irwin at Thinking Digital 2018

I was at the excellent thinking digital conference yesterday when Paul Irwin from trylife took to the stage. Ironically he followed a excellent talk from Tatiana Simonian who made a clear call for more diversity and inclusion within the digital sector.

Sat in the 2nd row with my Nikon camera I was enjoying the story of his life and trylife (I was planning on talking to him afterwards) but I was caught in a state of flux. The words (ones which were not swear words) coming out of his mouth and seemed mismatched with his tshirt or choice of tshirt.

From my view it was a young female adult with a breast on show. Ok from my point of view quite tasteless but certainly something I can’t really imagine someone wearing at a professional conference. And I say that haven given talks about dating, love, sex and hookup culture. I was always sure to make my slides acceptable for a general audience. There is no way, even if I owned such clothes would I wear them on stage. This is all before I even looked at the conference code of conduct.

The last few conferences I have spoke at, I had needed to sign or least explicitly agree to the code of conduct in some way. I hadn’t really considered exactly why the speakers would need to do this, as the speakers should be onboard with this anyway? But now I totally get it.

I hasn’t noticed Thayer had already left for reasons I was still juggling in my mind.

Things got really concrete in my mind as Paul started talking about how he was helping young girls in trylife. I kept thinking how are you helping by wearing that tshirt? Did you not look in the mirror and think? Don’t you see the paradox which you have created?

This is when I started looking at the hashtag #tdc18 to see what others thought. This is when I saw Thayer’s tweets then I saw Christian’s one.

I was struck because she was right and I was a fool to sit there wondering about this paradox which was opening up in front of me. Heck I even gave Paul a token finger clap (indicating how I was feeling at the time) while others cheered around me.

Some people will argue that Mr Bingo’s talk was even more sexualised and he did use the words “fuck it” but the context was very different. The actions, words and clothes of Mr Bingo were not mismatched, like Paul.

The message he delivered was truly soiled by his choice of t-shirt. The swearing I could put up with as it wasn’t aggressive (although also against the code of conduct) and but I couldn’t take him serious, and I know thats on me. But his choice of a sexualised t-shirt reflected badly on him and a great conference; and thats not good!

After the break Herb Kim apologized to everyone on stage and later on twitter.

Someone close to me described it something like this…

People actions should equal what they say, especially on a stage.

What happened next is difficult to say as I wasn’t witness to any of it. But I heard clearly aggressive threatening behaviour from one of Paul’s friends at Thayer when she approached him to talk through things. The best thing he could have done was be understanding about things but judging by his twitter this was the last thing on his mind…

Thayer you have my total support and I’m sorry I didn’t join you when you stood up and left.

Updated – 25th May

Herb the founder of Thinking Digital has issued a statement on his medium to what happened at Thinking Digital 2018. It includes a apology from Paul Irwin about what happened on the day.

Updated – 30th May

Great news.

Why oh why Vero?

Mastodon

Something is rising in the public consciousness around the social network apps we are using. Be it due to the changes in Snapchat, the massive turd which is facebook messenger (I’m using the lite version with locked down permissions) or Instagram algorithm changes.

There was a opportunity to move people away from these networks (at least in mobile) but what happened? The media and people started suggesting the use of another proprietary closed sourced startup app… this one called Vero.

I’m unsure like a lot of people, what pushed Vero to the forth front at the right time but i have to give them some credit with picking the right moment?

Ideally I’d like to see systems like Mastodon pushed forward but I think there are lessons which can be learned from Vero’s push into the limelight. Because although Vero’s end user licence looks barely reasonable right now, you have no idea when it will change or/and it will be come a roach motel just like the ones people are unhappy with now…

Maybe its not too late… ? Or its time to start thinking about the next opportunity? I certainly think it can be done, you only have to look at the way the Mastodon community made it easy for avid twitter users to shift over. Whats needed now is user experience expertise around the apps to expose the advantage of Mastodon to the user without over-loading or intimating. Aral talks about the lack of focus on the user experience and in this case, he’s dead right.

Its all for the taking; expose the natural benefits of Mastodon to the user and make them a key part of the experience.

I wonder about the effect of Instagram on our minds

I have been having a discussion with Tim about Instagram recently. Interestingly its also the launch of Ingrid Goes West.

From tmdb…

Ingrid becomes obsessed with a social network star named Taylor Sloane who seemingly has a perfect life. But when Ingrid decides to drop everything and move west to be Taylor’s friend, her behaviour turns unsettling and dangerous.

It doesn’t sound great, something like Friend Request and Unfriended.

Anyway…

I don’t use it because I have issues with the whole setup of instagram. Without going into too much detail, here’s the main points.

  1. I don’t agree with Instagram’s end user licence, which includes using your photos in almost anyway they like.
  2. I don’t like the creation of instagrams is all within the same app (for example I use a Plume on Android and Corebird on Ubuntu) to access Twiter and I create, edit and post to twitter not within twitter (it a important distinction)
  3. I don’t like the fact Instagram isn’t really public, indexable or accessible unless you are on instagram.
  4. I have a problem with filtered views of real life. Its bad enough that every photo you see has been doctored/photoshopped/filtered/algorithmicilly messed. But I don’t want to see them everyday.

Photoshopping

And the last point is a key one, as its clear there are serious problems with seeing this level of fakeness everywhere. Like it or not, it becomes normalised.

I hear some of you say this is no more than what Twitter or Facebook do/enable? and I would somewhat agree… but I have built ways to deal with this partly due to being able to use other apps or types of behaviours which run against the way it was engineered.

For example I don’t really look at the Facebook timeline, as I know its trying to lock me into a filter bubble, somewhat of my own making. Yes I could do a Robert Scoble and manage it into a better bubble, but I just don’t think its worthy of attention; plus Facebook doesn’t share this data in their data portability exports meaning all that work isn’t transferable at all. I know being without Facebook makes things very tricky but I can manage my activity within it right now, this might change of course as FB gets more greedy

Its easy to blame Instagram for all types of ills but its not solely them. Its a combination of Instagram and its share holders, the silicon valley push for winner takes all adoption of everything (dare I say anything about Uber in London) but most of all; ourselves for being suckers to peer pressure, advertising and patterns which are so established others are telling us exactly how they work!

We blindly follow suit without thinking about the long term effects. Mark Manson suggests the smartphone is going to be this generations cigarettes. When thinking about most peoples experience of the smartphone with Instagram, Facebook and Whatsapp preloaded, I can’t help but think actually he’s got a good point. Its the perfect Black Mirror episode, total fantasy as Rachel said!

Black MIrror s3ep1

We seem to be playing with fire without a true understanding of the consequences. Even if we do, how do you make this clear to others who are suckered in? How do you make this clear in the face of peer & social pressure? How do we make this clear to the next generation, the ones born with visions of a unattainable perfection all around them?

I’m not a sucker and won’t be joining to be a poster or lurker just so I can scroll through my friends fake reality pictures.

Using Twitter in online dating….

I was reading about Loveflutter Relaunches With A Surprising New Way To Meet Your Match: Twitter.

Once upon a time, the world’s great lovers wooed with songs and sonnets. Today, we express our deepest feelings in 140 characters or less.

Or at least you do if you’re on Loveflutter, a dating service that has partnered with Twitter to prove social media feeds are the new windows to the soul.

Originally founded in 2013, London-based Loveflutter relaunched this May with an updated approach to modern matchmaking. Like other popular dating apps, users swipe left or right on candidates in hopes of scoring a mutual match. But unlike the competition, where singles pay attention to little more than looks, Loveflutter takes appearance out of the equation.

Images on Loveflutter are blurred until you click on them. Instead, users are invited to swipe left or right based on each other’s 10 latest tweets.

Its a interesting idea and similar to some of my thoughts way back when… Soon as heard this I thought about Tweetfoxxy, which is the thing I was trying to find on the tram wifi last week.

I joined mastodon microbloging service, not the rock band!

mastodonI have always been a big fan of Jabber, Laconi.ca and Status.net. All are federated services which go well beyond the centralised and even decentralised ideas. But they all were second fiddle to the centralised services like Twitter mainly down to user experience.

So I’m wondering if Mastondon will be any different? Of course theres only one way to find out, and thats to try it out.

So I am… but what is it?

Mastodon is a fast-growing Twitter-like social network that seeks to re-create the service’s best parts while eliminating its whale-sized problems. The distributed, open-source platform offers better tools for privacy and fighting harassment than Twitter does, but it also comes with a learning curve. Mastodon’s federated nature means there’s no single website to use, and learning how to wade through its timeline of tweets (which it calls toots) takes some time to adjust to.

But for anyone who misses “the old Twitter” — the days of purely chronological timelines, no ads, and an inescapable flood of harassment — Mastodon can feel like a haven

Old twitter was great I’ll be honest but its not that I long for the old days of twitter. Its just I can feel the their business model imposed from their backers/investors infringing on why I originally used twitter. There is a blog drafted which is all about how business models imposed by VC/backers/etc ruins services/products. For example Pebble, Evernote, Twitter, etc.

So I’m cubicgarden on mastodon.cloud, which should federate across to other Mastondon server instances. Feel free to say hi…

Seems even at 36000ft you can’t escape?

At 36,000 feet you can't escape me?

I always knew Horizon was syndicated widely but seeing it on a plane is kind of insane. a Thanks to Claire for the very freaky tweet.

I did say in reply, its a good thing it wasn’t undressed!

I’ll have to give something to the person who happens to watch season 1 episode 9 of undressed on a plane, using the in flight system and then grabs a snap… What exactly is uncertain but I’ll think of something.

Scary stuff eh!

The Favourite sofa sitting positions of idiots?

It was Chris who retweeted this and I instantly thought hey, I don’t sit like this bloody Ian idiot. Mainly the “thats better” one of course and maybe a little “Sidelean” when alone on my own sofa – Only!

Facebook is the village campfire?

M. Night Shyamalan's Village
M. Night Shyamalan may have lost his movie mojo but the village is a apt example.

Got to love Oli… He wrote about his return to Facebook and yes I did reply to his thoughts in a blog. To which he replied to in a new blog, stipulating Facebook is the campfire…

Imagine living in a village, in your own cottage, doing your own thing. You wave to your neighbors, see them at the odd social event and maybe gossip when you meet. Nice huh? One night somebody builds a fire and a few people drift out and sit round the fire, singing songs, telling tales, toasting marshmallows, all the stuff you’ve seen in American summer camps that probably never actually happens.

Over time, more people join in the evenings, and the quality of the chat drops off a bit, and a few people are a bit arsey, but it’s nice, warm and social. You don’t have to do much if you don’t want, but you’ll get the odd beer or marshmallow and hear the little bits of news, a pregnancy, a holiday, who’s been snogging who etc etc. There are claps on the back when you crack a joke. Everybody faces into the fire.

Not going out to that fire is tough. It’s not that people forgot about you, or don’t want to see you or hear your news, but they do forgot that they haven’t seen you, or told you their news. They shared it round the campfire after all. You might still have people round to tea occasionally, or pick up the phone to speak to them but that easy comradery is missing. That warm glow doesn’t reach far either, in fact it’s very much a walled garden.

When I think of the campfire, I think little village and nice for a while but then its time to get out. Time to leave, explore and move forward. Maybe thats what bugs me a lot about using Facebook. Its all people I know and its too comfortable. I can talk about the filter bubble and data ethics and facebook messing with the news feed. But its all too comfortable. Theres nothing challenging your views, nothing making you explore (except the occasional event).

I would go as far as to say Facebook is making you a boring old sod. Remember, when I wrote how to be interesting ages ago. I wrote…

Talk to someone new at least every week

Good luck doing that on Facebook…  Even with a massive number of friends on Facebook, Facebook will filter out most of them. Yes welcome to the village campfire.

As I said above, M. Night Shyamalan may have lost his movie mojo but the village is a perfect example.

The population of a small, isolated countryside village believe that their alliance with the mysterious creatures that inhabit the forest around them is coming to an end.

If you not seen the film, you are not missing anything and I’m going to kind of spoil it for you right now for you. The mysterious creatures are other people and they exist in the outside world of the internet. That campfire keeps pulling you back but sometimes you just need to get out discover the milestones of freedom by getting out of the village and that super comfortable campfire.

Its nice to visit every once in a while, catchup, get warm and decide to leave. Do you want to hangout there and be known as the one who never leaves?

I thought not… Moderation Oli, limit your time at the Facebook campfire!

 

 

5 years ago, The best Hello world message

While on the mend, I finally wrote my first blog to the world via dictation to my family. I remember saying the words with tears in my eyes. Of course it had to be Hello World, as there was nothing more fitting. The joke about hospital food was my injection of humour, although I have to say the hospital kitchen/restaurant really looked after me while I was there. I was given quite plain food but they kept checking about my allergies all the time. Actually far more than the doctors (as you will see in the next week)

It was great being able to talk again although I still have the trach scar, which will never go away now. I couldn’t explain how much the cards and comments meant to me and my family. I was kind of overwhelmed to know I had touched so many peoples lives and they in turned felt it was worth reaching back.

I was looking forward to moving out of ICU because this about the time when I started really getting better really fast. It was like my body was just repairing its self at a rate the hospital had never seen before. Amazing when you consider the life expectancy of people who have bleed on the brain

If subarachnoid hemorrhage from aneurysm, about 50% die within the first few days in hospital. If intracranial bleed, with/without stroke, the death rate within year one approaches 60%. Figures have remained constant for years.

I am one of the very few lucky ones and believe me don’t I know it, and there is no way I will forget it

 

By —

[Message below was dictated by Ian this evening, no internet connection in hospital]

Ian says:

‘Hello world!  Thank you very much for taking the time to find out how I am doing.  I am doing okay.  I am still in hospital, but making a positive recovery.  Thank you to everybody who has written to me and my family and thanks for writing such amazing things.

The trach tube is out and I can speak again.  The feeding tube is also out.  I had solid food for the first time yesterday–it was horrible!  Of course it was hospital food.

Thank you for all the messages to my family.  I’m on the way to recovery.’

[Ian is due to be moved out of ICU and on to the ward as soon as a bed becomes available.]

By —

Ian is continuing to do well and they are hoping to move him out of ICU and on to the ward soon (possibly this weekend).  He was a bit tired today and slept more, but he did spend most of yesterday out of bed and sitting up.

Ian’s flatmate Tim brought his laptop in for him, but there is not a wireless connection to use so Ian will not be online yet.

Unfortunately Ian missed some visitors today because he was sleeping.  For anyone else who is visiting, please be aware you might not get to see him if he is tired, but we do appreciate you coming to visit!

They hope to put some sort of valve into the trach tube that will make it possible for Ian to speak, but I am not sure when they’ll do this.

By —

At the moment Ian is still in the ICU.  They had thought they were going to move him to the H.D. unit, but there wasn’t a bed available, so for now the plan is for him to stay in ICU until he is ready to move to the ward.

Ian is ready to have visitors now, but in ICU this is limited to two people at a time.  If you want to come visit, please leave a message in the guestbook letting us know what day and time you plan to come (and please leave a contact number in case we need to reach you).  Visiting hours are from 1pm-9pm daily.  They are quite strict about what can be brought into the ICU due to infection control.

Ian still cannot talk due to the trach tube so it can be difficult to communicate with him.  He is finding it frustrating, but appreciates visitors coming as he is getting bored.