What data is personal to you?

Alex data ethics

On International data privacy day, BBC R&D has posted a video asking a bunch of smart people what data is personal to them?

As I have been working on the project for quite sometime, I can happily say there is a lot more to come. Including ways to feedback. Go check have a look and see if you agree with the opinions of our industry experts?

You might have seen the theme of the work in the blog post ethics of data and what we setup at Mozilla Festival. Expect more in the future…

 

A review of my 2014 resolutions

Its been quite a year for me, the odd google plus video above is just a tiny slice of my hectic but great year.

This year I thought I would do  something a little different following metadating and another year of the quantified self. Following a bit of a twitter chat with Herb and Zoe, I thought I’d give Stephen Wolfram a run for his money (not!) Here’s some of what happened this year.

I  spent 6 days, 10 hours, 50 minutes watching 213 episodes over the past year.

I spent 1 week, 2 days, 19 hours, 35 minutes watching 111 movies over the past year.

Top 10 artists I listen to this year…

  1. Digital Italic
  2. Twit.tv
  3. Mauro Picotto
  4. Placebo
  5. Marco V
  6. Simon Patterson
  7. Gaia
  8. 2 Many DJ’s
  9. Sander Van Doorn
  10. Ferry Corsten

So how did I do on last years resolutions?

Baking a cake

  1. Go to a new part of the world
    Yeah this didn’t happen unless you count north Wales as a different part of the world. Unfortunately the holiday to Jamaica didn’t happen when my parents moved house. I’m already looking at Tokyo prices for 2015.
  2. Use my Task list more
    Success, I certainly used it a lot more but I could still do with better ways to do offline tasks. I am intrigued about the differences between using task to remember stuff and tasks to refer to stuff.
  3. Bake a bloody cake
    Ahhhh! The cake is not a lie… Well Sarah’s Banana bread/loaf suggestion may did happen while I was down in Bristol with my parents. Yes its easier but frankly it removes the temptation to bake Victoria sponge’s all the time. Following instructions or a recipe is something I always found painful. However I’m finally going to remove it from my list! Not to say I won’t ever make one again.
  4. Ride the bloody Smiler
    Not only have I rode the smiler this year, I think in total I have done 16+ times (sorry I lost count of how many times now, should be quantifying my rides) and boy oh boy have I loved it. The longest wait must be 1 hour 20mins in the single riders queue. Next year I’m considering get another yearly pass because its been great fun riding in Alton Towers and Thorpe Park when it was April and May.
  5. Improve my circus skills
    This year was ideal for circus skills but I rarely went out and did any. I did make it to the Cholton Circus house event once and its in my calendar now at least. Maybe next year?
  6. Move away from GoDaddy
    I’m fully away from Godaddy. Moved my blog, emails and domain to hover and WPengine. Another one marked off the list.
  7. Surround myself in higher thinking
    This is certainly happening, I generally don’t watch much live transmitted TV anyway but this year I’m watching far far less. Generally I’m watching either on-demand TV shows or something educational from Youtube. The chromecast has helped with this I have to say, Xbmc is cool but the chromecast has made the process super simple. My podcast listening has increased too with things like Freakonomics. I also messed with my twitter followers a little, so generally I’m getting higher thinking stuff. My ianforrester account follows all my friends instead.
  8. Scooter into another country
    So May/June was amazing. I did the simple option of driving through Wales, although the mountains were incredible. but I clocked up 403 miles during that trip alone. Myself and Oli Wood are talking about doing something next year, so expect to hear more soon.
  9. Use social media to stay in touch with friends
    I started off well but then kind of lost my way in the middle of the year. I guess removing Facebook from my phone was always going to cause a issues and not enough friends use other platforms daily. I did do a little social experiment to see what I should do next year, around a Christmas card on G+ and FB.
  10. Pick up the family genealogy
    With the help of Sarah, my insane family tree is on genealogy.co.uk. I can’t believe how much they charge but we have identified quite a few of the family who are already using it and could take it onwards.
  11. Live the life I choose
    Dave commented on my thoughts about the hyperconnected world we are heading into.

    As I believe in the hyper-connected world we’re moving into. My bets are against hierarchy and traditional. Maybe there is a word which sums this up?

    My assumption would be something like dynamic linking. However Dave suggests that word I’m looking for is Heterarchy.
    …enough i hear you cry, how did it go this year?

    So this year I stuck to my principles and I believe are seeing signs which are fruitful. I reached out for better advice to better manage and use my dyslexia to further my own career. Also next year will be the 5 year anniversary of mybrushwithdeath.

  12. Sort out my love life and finish the book
    Been put myself out there and attended many weird and wonderful events. I also started dating different women again, hey you never know (opposites attract?) The book is still being written (slowly) but its more difficult as the dates I been on in 2014 have not been anywhere as bad, I’m also trying to remember some of the older dates. I could make up drama but everything to date has been written on top of the truth.

Banana bread

QS Metadating in Newcastle

Metadating

A few weeks ago I was accepted for Newcastle Culture Lab’s Metadating research trail.

The research was more about our attitudes to sharing personal data than dating. However they did invite singles and included a number of events which included speed dating. I guess also meta-dating would be factually correct as we were talking about dating while dating.

Metadating

There was homework which had to be done on the run up to the event. You were given a booklet which you could fill in as much as you were comfortable with. On top of that was some blank generic graphs which could be filled in with our own data. When I say our data, it could be any Quantified Self data, from how many coffee’s you had over the week to you’re more intimate data like you’re sleep cycle daily. Everything was up to you to declare, which gets around the problem of using Quantified Self data in research. But it also makes it difficult to compare. Luckily this wasn’t about the data metrics.

Once at the event (I rolled it into a wider visit to Newcastle’s Culture lab where I talked about ethics of data, a visit to Newcastle’s Makerspace and Campus North. Didn’t make it to the beach however). I was one of the  first to turn up as I was heading home to Manchester on the last train. It became clear the problems I had with thestarter, were pretty much reversed as very few women turned up. (this is a issue I’d love to spend some time sorting out one day)

The PhD students lead by Christopher had bought some nibbles (olives, cheese sticks, etc) and lots of Cava. By the time we done the icebreaker it was down to the group discussions about our data with a Cava in full swing.

Metadating

We were split into two groups and we started critiquing the anonymously data sheets. It was fascinating to hear other peoples views on data points, dread to think what people said about my sleep cycle and steps per day. It also became clear the data may have been fudged in parts by others. To be fair I did use real data but choose to leave off some of the measurements. Everything was recorded by camera and audio dictation, which I bet made for some very interesting insight into data sharing.

By the second half, the cava was certainly having a bit of an effect and peoples lips loosened. Just in time for the speed dating portion. Now to be fair Chris and the other students had never been speed dating, so it was a little odd but the imbalance in men, meant we had to do it in two parts. On the speed dating, we discussed each others data sheets and more (ooeerr!) We were given the opportunity to write something to each person later.

Metadating

Another eye opener for me was at the very end when we constructed the perfect and worst dating profile for set people from data we made up. The eye opener for me was building a dating profile for a women who was career driven. All the guys around me seemed to not like her, while I was asking if she was real and where can I meet her? (Cava had certainly kicked in by then)

The event ended about 8:45pm so quite a bit over time but as people started shifting to the local pub, I had enough time to quickly have a drink then head to Newcastle Station for my long train ride home.

The metadating event was fun and to be honest the culture lab students may have gained a ton of insight from the frank and slightly loose lipped participations on the night. I imagine the Cava was bought expecting the full board of people but with the smaller number and the stand ins, there was plenty to go around.

I am surprise I didn’t fall a sleep on the train. However to be honest it was so busy down to York, theres no way I could fall a sleep. I’ll save my journey for another day…

The metadating event was great fun and from a research point of view I’m very interested in what comes out of it. Its a shame a bunch of women didn’t turn up but the students did a good job thinking on their feet and making it work. I suggested to Chris and Bettina that if they did it in Manchester or London it would be packed out, and I would certainly support them in the research.

Metadating in Newcastle

Couple in a coffee shop

Metadating… by Newcastle’s Culture Lab (I must declare I’m working with these guys in BBC R&D’s User eXperience Partnership, but this is nothing to do with me. I was told about it and went wow!)

Exploring the Romance of Personal Data, A singles dating event, hosted by researchers at Culture Lab

Ok you got my interest already… The Quantified Self and Dating?

We’re all creating more data about our lives, be it on social media or on our smartphones. Nowadays, people even use technology to track themselves and record how active they are, where they’ve been or how well they’ve slept. But how public should this data be? What would this look like on a dating profile? Would you like to know how late she works or whether he’s a night owl? Just how much does he workout? Where’s her favourite coffee shop?

Meta Dating is a free singles event for people interested in data and dating, hosted by researchers at Culture Lab, Newcastle University.

We’re looking for single people who have some experience of online dating to take part, meet other singles, have fun, and explore the romance of personal data!

Of  course I signed up straight away… I am a little worried about how they are going to collect all my data  but I’ll worry about that later. One of the questions asked was, why you? To which I roughly replied…

I’m a fan of the Quantified Self and use Online and Offline dating services all the time. I’m also working in the Quantified Self area in regards to the ethics of data and new storytelling experiences. I’ll be really interested to know if theres any link between the data about ourselves and data in whom we seek.

As most of you know, I tend to hold quite strong views about online dating and the process which services claim to use to match people. I pretty much damned most dating sites for doing nothing more than simply bringing people together like Facebook. Shuffled my feet at the idea of using algorithms to match people. And even made jokes about using things like smell to match people. But whats upset me the most is the lack of scientific methodology to solve the problem.

Well here’s my chance to see if there is something to it or its simply a joke like quantified toilets and premium dating. Be fascinating to see how they get over things like looks, interests and things which are just you like race, height, etc, etc… or will the results come back with something similar to the idea of the unquantifiable?

Another video which must be watched…

Aral Balkan – Free is a Lie – Thinking Digital 2014 from Thinking Digital on Vimeo.

Aral drives me a little crazy, I end up writing massive long blog posts about his talks. But I have to give it to him, the showmanship and underlying ideas are pretty much good. You can see for yourself in the talk which got me writing about the 5 stacks.

Don’t forget to check out my blog for BBC R&D connected what happened at the Quantified self and Thinking DigitalThe panel discussion which I made reference to, is also up and Tom Scott’s video telling us its all going to be ok.

Maybe next time you should come to Thinking Digital and experience it for yourselves?

Keynotes from QSEU14

I mentioned the keynote speakers in my blog post about the Quantified Self Europe 2014 review. The videos are now available with transcripts on the QS site.

The Weight of Things Lost by Kaiton Williams

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How do we incorporate the perspectives of the many who can’t participate here, are overlooked and marginalized, but whose lives will eventually be affected by practices that spiral out from ours?

Such a great quote and excellent to hear Kaiton talk about this in detail.

Quantified Self Europe 2014

Leaning Into Grief, by Dana Greenfield

Wondering how to hold tight to her memory, I would spend time in her basement office, meditating over her huge collection of books, files, multiple white boards and notebooks and calendars, awards, and gifts from patients. I thought–there must be a way to capture it all. she had already left such a profound footprint in the world—between her websites and students and patients. How could we make it last a bit longer?

Even yesterday at the Quantified Self Manchester meetup, there was some discussion about how uncomfortable Dana’s talk was to watch due to the subject matter.

I thought it was incredible and very telling that even now it divides people.

Keeping your Quantified Self on the right track

I had the joy of attending the Quantified Self Europe 2014 in Amsterdam. It was amazing and I feel kind of gutted its over so quick.

Its amazing to think it was only a year since we talked about sharing data and the joy of data at the Quantified Self Europe 2013. In the year between the two a lot has happened, especially when Edward Snowdon revealed to the world that we were being hoodwinked into something not even George Orwell could make up.

The big unofficial theme of the conference was about data privacy and security. To be honest I’ve been loosely calling it data ethics, which hopefully will make sense in the near future. During the opening of the conference, Gary and Ernesto made a point of talking about photoblogging/lifeblogging and made reference to last years session about lifeblogging. It was common sense but good to be clear right from the top.

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The amount of devices like Google Glass, Autographers and Narrative Clip was interesting in its self. Number-wise, I spotted 5 Google Glasses, 4 Autographers (including myself) and about 30+ Narrative clips. The narrative clip was certainly everywhere and with no status, you have no idea if it was on, off or taking a picture right then. I wore the Autographer and the pictures have been useful to remind myself of things and people I spoke to. I will admit I did leave it on by accident when in the loo but nothing was captured (ooer! lets leave at that)

Rami Albatal explaining the technology of image processing

The QS guys, asked their keynote speakers to talk without slides and the talks were passionate and engaging. Dana Greenfield and Kaiton Williams talks were well worth  listening to again. Dana’s talk about grief was personal and really seemed to divide people. I heard someone say it was soooo personal they felt a little uncomfortable. Which I said is a good thing and unique to QSEU. Kaiton talked about self image and posed the question, what happens when being healthy is no longer about not being sick? He’s point was the conflict between business models and self image. What we do now, will effect the future as QS races to the mainstream.

The Conference is structured like a Unconference with filled in slots. At some points there is up to 20 things happening at once. I decided to avoid the eHealth type talks and applications, because they wouldn’t be much use to work and its already quite developed an area.

Here’s my other highlights

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Data Futures: Possibilities and Dreams by Alberto Frigo

This discussion was about data reuse beyond the 5-10 years. What happens to our data, where does it just get stored? Does it get deleted? What is the weight of this data? Ethics were in effect again, and interestingly this was right before the EU rule came in about removing links from Google. Kaiton was in the room and said a bunch of interesting things but it was interesting to hear spooky consequences of automated systems. Like someone getting a request to send birthday greetings to someone who had died 5 years previously. This sounds kind of crazy but its going to happen more and more.

Personal data: Attack & Defence by Magnus Kalkuhl and Kley Reynolds.

This two part session started more like a workshop but found its feet in part 2, when Kley ran through a European project (which I’m still trying to get the details for) it turns your quantified state into a finger print securing your devices using a PAN model. This really fascinating for a number of reasons including if it was stolen, only person who could use it would be you or a thief who spend weeks emulating you. At some point Kley mentioned how it could hook into BitCoin but by that point my head was blown already.

Kley also later when talking, said how much he liked the idea of Perceptive Media. He offered up a scenario involving a live view of your house being monitored by an external person like you can do with taskrabbit. You don’t want to necessarily tell that person where your house is, so you change aspects of your home so its not clear where it is or even what time it is. Its very much like Ghost in the Shell’s ghost hacker, the laughing man

The Laughing Man is an expert hacker, able to hide his physical presence by editing himself out of video feeds and cybernetic eyes, concealing his identity by superimposing an animated logo over his face, and hijacking cybernetic brains altogether, all in real-time

Basically your able to manipulate the video feed in real time. If you want to see basic evidence of this, check out diminished reality. It can be simple things like change the angle of the camera,  removing certain objects, changing a dog into a cat for example but these little things all add up to the person watching not quite sure when they decide to come and rob the place. Thanks for that Kley and I certainly look forward to hearing more about the project because damm it could be a disruptive.

It was interesting to hear the term lifejacking in the context of hacking quantified self data. Actually even I was slightly worried…

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Is Open Privacy the Next Open Source? by Laurie Frick

Another good conversation resulting in lots of viewpoints including the viewpoint shared with John Wilbanks. Very interesting in the light of the health health caredata upset recently in the UK.

One of the things I never really considered in so much is the linked-data. When I was running BBC Backstage, linked data was a pleasure and joy. The ability to link data to make new and interesting insights was mind blowing. Mashup and create new insight was great but with personal data the insight takes on a much more scary and much more sinister tone.

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The other aspect is the amount of insight you can tell over time. A small subset of data can tell you little but a year or more of location data can tell you loads more than you may really want to consider. This was further backed up in the session, Passive Sensing on Smart Phones with Jan Peter Larsen and Freek van Polen. Passive sensing or as I prefer implicit data is the next battle ground.

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It was a pleasure to meet PBS’s Sesame Street innovations team too, further proving the quantified self is grow for the betterment of all plus they seem to be trying to archive a similar goal to our project.

Privacy in the cloud

Its aggregation which was the other big trend trend I noticed at QSEU14. Everyone had their own aggregation dashboard to collect your data and make insights. Pryv looked pretty good with a ton of useful clearances and the ability to store exactly which country your data sits. There were even companies offering to make insight of your data for you, bypassing the inputing data part. Even Intel had their own in beta service. I have been a fan of Fluxstream because its the most developed open source dashboard I’ve seen to date. There are many others but I don’t feel confident recommending or using something closed source to store my private data.

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I actually had the pleasure of meeting the people behind the fluxstream project and I was very impressed with her ignite talk which highlighted and answered a lot of the issues I had with it. Main one being unambiguous timestamps and a better API. Afterward my talk at the end of the day, we caught up and we discussed how they Flux could work with Trakt.TV, something I’d like to have, as part of a very early Quantified Self project in R&D. Its worth mentioning the project in part but I’d rather do that officially on the R&D blog, although you can get a sniff of the presentation here. Its low on details because its mainly about my own consumption and its auto advancing slides, which I hate so much!

Quantified Self Europe 2014

There was touching finish to the proceedings with a public mention about the work of Seth Roberts (who recently died). Its fitting to end with his moto… The Best Way to Learn is to Do. This sums up the Quantified Self movement more than you can imagine. Even when I finished my presentation, Ernesto asked me the question of what I personally got out of the insight into my own media consumption. We might be the edge cases and even deeply curiosity but as Kaiton said, we will define what the rest of the world does in the near future…

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It was an exciting event and I’m very glad I could participate in a small way. It didn’t quite have the buzz of the 2013’s QS Europe but I think its because the diversity of the subjects was so wide, while this year it was much more concrete around the subjects mentioned before. I’ll look forward to telling more on the R&D Blog and going into more depth in internal talks and in the QS Manchester meetup on the 6th June.

Thanks to everyone who took part and made it a great event… Look forward to seeing you all in 2015?

Embracing the unquantifiable self?

The Quantified Self scene panel

I’m sat in Manchester terminal 3 airport using the free wifi (for one hour with a sign up to some bothersome news letter) anyway I’m on my way to the Quantified Self Europe Conference in Amsterdam for the 2nd year (reasons why you should be coming too). I gather the popularity of the conference and area has obviously started to rise with a sharp 50% increase in the ticket price. Fair dues but further proves its getting popular and breaking into the mainstream.

But I wanted to reflect on aspects I’ve touched on many times in my blog. The unquantifiable.

Its one of those lunch time chats in R&D. This time I was talking to Matt Brooks and Jasmine about the Quantified Self and some of the smart data wearemoment.us were able to understand from patterns of usage. Matt stopped me and said how much he hated recommendation systems.

“I want a system which doesn’t give you what you want or even the opposite… ”

The perfect example being spotify…  Before long we were talking l about something which is dear to me and my blogging.

The unquantifiable! Or as Matt likes to call it the “unquantifiable self” credit to Matt for that one.

There seems to be somethings which are simply unquantifiable. Two come to mind instantly. Dj mixing and Chemistry when dating. Everything can be right on paper but when meeting that person in real life or hearing that mix, something just isn’t right. Not only that it can be a total rejection of something you should in the data, adore?

Although I love the quantified self: knowledge through numbers. I feel like I appreciate the unquantifiable even more now. I know there is those who believe we just need more data or more computational power (they may even be right) but in the meanwhile lets have fun with the unquantifiable self.

See you at the quantified self europe. By the way I’ll be talking on Sunday afternoon about my media consumption and maybe a tiny bit about how this relates to perceptive media.

Ride out with the Autographer camera


View Larger Map

A while ago I went for a ride out across to Sheffield with the Autographer camera. I went over the Woodhead pass and back via Snakes pass. Some of the images are wonderful and it would be great to share them on a map using something like Flickr, Strava or elsewhere?

Photoblogging with the Autographer

However I found out that the autographer doesn’t actually add the geotags to the photos directly. Instead it creates a file which a desktop application reads and adds to the photos directly afterwards. Its a bit weird because almost all camera phones support geotagging directly so you would have thought the autographer would also do the same?

Photoblogging with the Autographer

I like the Autographer because it writes most things to the storage like you would expect a camera to do. Making it highly usable on Linux. However the lack of geotagging without the application is painful and seems a oversight. I can’t understand what they were thinking… Yes additional data might not work in the EXIF data stream but geotags are very common now.

If I was to do it again, I would do it with a GoPro and mount it somewhere better than around my neck. Seen quite a few riders with them strapped to the helmet, which makes the most sense.

What if people came with care labels? Quantified emotions

It started off as a discussion on Twitter and ended up as a blog post on Zoe’s blog.

Sometimes it’s not always easy to describe how you’re feeling. You may feel over-whelmed, worried that you might make others feel over-whelmed, just not have the words or want to avoid thinking about what it is that is really occupying your mind…

…That’s what got me started thinking about “what if people had care labels like clothes?”.

The concept of people with care labels is a fun and intriguing one. What would your care label say? But it goes deep into the quantified universe.

Are there somethings which can not be quantified? You can go down to the chemical functions, maybe even the watch the neutrons firing away but does that give you enough scope over emotion?  Zoe talks about some apps which allow you to self track mood but as someone who assigns a mood to my self reported dreams with Dreamboard. Its sometimes difficult quantifying it down to a single emotion.

I feel it would work better like a colour picker. I feel a little bit of this and a little bit of that but also a dash of the other.

So less set labels but more mixable pallets. But of course the idea of them being visible still stands. And of course the question of what other people will do once they know how you feel? This certainly would make playing hard to get… a whole different game.

Intriguing and collides right into the work Rain’s been working on, with wearables.

Lifelogging a new way to look at reality

Me with Google Glass

When I was at the Quantified Self Europe conference earlier this year, I was at a talk about lifelogging… It was interesting to say the least but I took away a number of things. Two stuck out…

  1. The images which are taken, cease being images alone per-say.
  2. Lifelogging is like having another sense.

Really interesting to think about that while reading Here’s What Memoto Does With Your Entire Life After Photographing It and How lifelogging is transforming the way we remember track our lives.

The images which are taken, cease being images alone per-say

“Photos make sense as contextualizers for all that data [from the quantified self movement],” Johansson says. By saving data like GPS coordinates and which direction the camera is facing along with the photo, Memoto has also positioned itself for possibilities such as putting together all of the photos taken from one place into a 3-D map or allowing users to opt into a photo pool when they’re at the same event.

None of this, however, will be possible unless enough people find the app’s automatic timeline of their lives compelling enough to warrant wearing Memoto in the first place. For that, the company is betting on something akin to an extreme FOMO–or a fear of missing out, not on an experience, but on the opportunity to capture an experience. FOMOOCE, if you will. “This is a way to get to an effective mindfulness by knowing you are not missing out on capturing anything,” Johansson says.

Lifelogging is like having another sense

In 2013, lifelogging is set to hit another milestone with the launch of self-tracking hardware devices like Google Glass and Memoto’s wearable, automatic camera set to hit market.

To explore the “lifelogging” phenomenon and the shift in how people are remembering and capturing their lives, the creators of Memoto recently launched a documentary about the lifelogging movement. The documentary includes interviews with experts in the field like Steve Mann and Gordon Bell, along with the technical lead of Google Glass — exploring the past, present and future of lifelogging.

Of course the whole lifeblogging movement is dominated with Google Glass right now and the idea is in many visions, (usually dystopian) of the future including Charlie Brooker’s Black Mirror’s The Entire History of You.

Set in an alternative reality where most people have a ‘grain’ implanted behind their ear which records everything they do, see or hear. This allows memories to be played back either in front of the person’s eyes or on a screen, a process known as a ‘re-do’.

A promising and interesting future for lifelogging… Me thinks

Quantified self heads into the mainstream

Quantified Self Europe 2013

Thanks to Rosie on Twitter, for alerting me to the BBC’s Science Club programme better known as the Dara O Briain’s Science Club. I had never heard of it before and to be fair when I watch it, I thought it was going to be crappy. However it was good, almost like the BBC had taken science very seriously. And now I understand why people are comparing Dr Helen Czerski to Brian Cox.

Science Club explores how powerful, affordable technology is ushering in a new era of DIY science that everyone can get involved in. Science journalist Alok Jha is in California to see how citizen science is being used to save lives in the early detection of earthquakes.

Dr Helen Czerski goes to Brazil and discovers an ingenious innovation – in an attempt to eradicate a killer disease, mosquitoes have been modified to self-destruct. In the studio, Dara and Professor Mark Miodownik get to grips with an inflatable crash helmet, a beat box made from vegetables and capture lightning in a box. And the team delve into tech hacking to see how stripping down and re-using technology promises to change our world

The whole theme of the show was DIY science and there was plenty of it including a whole piece on the Quantified Self. The piece wasn’t the amazing but did a good job of explaining the basics, what you could do and what people are already doing. As I said it wasn’t bad at all. Well worth watching…

Then…

Jasmine today (Monday) tweets about BBC Horizon: Monitor Me.

Dr Kevin Fong explores a medical revolution that promises to help us live longer, healthier lives. Inspired by the boom in health-related apps and gadgets, it’s all about novel ways we can monitor ourselves around the clock. How we exercise, how we sleep, even how we sit.

Some doctors are now prescribing apps the way they once prescribed pills. Kevin meets the pioneers of this revolution. From the England Rugby 7s team, whose coach knows more about his players’ health than a doctor would, to the most monitored man in the world who diagnosed a life threatening disease from his own data, without going to the doctor.

The likes of these shows talking about what people are doing with the quantified self in a more public setting is certainly driving adoption in the mainstream. Hopefully the core principles will stay…

Better to know or to live in blissful ignorance?

23andme box

Following my brush with death I have taken a much deeper look at my family genes.

But one of the ultimate ways to know more is by signing up to 23 and me.

Although the idea freaks most people out, when you’ve been so close to death theres really little which can freak you out. So I have been considering the process quite a lot and looking through there material and some of the backstory of 23 and me.

Besides my thoughts of a world like Gattaca, I’m wondering if its better to know or live in a world of blissful ignorance? Although I do have to say blissful ignorance is part of the reason why I ended up in hospital. I do however wonder about 23 and me’s terms of conditions. There privacy statement is interesting too…

You may learn information about yourself that you do not anticipate. This information may evoke strong emotions and has the potential to alter your life and worldview. You may discover things about yourself that trouble you and that you may not have the ability to control or change (e.g., your father is not genetically your father, surprising facts related to your ancestry, or that someone with your genotype may have a higher than average chance of developing a specific condition or disease). These outcomes could have social, legal, or economic implications.

Genetic Information that you choose to share with your physician or other health care provider may become part of your medical record and through that route be accessible to other health care providers and/or insurance companies in the future. Genetic Information that you share with family, friends or employers may be used against your interests. Even if you share Genetic Information that has no or limited meaning today, that information could have greater meaning in the future as new discoveries are made. If you are asked by an insurance company whether you have learned Genetic Information about health conditions and you do not disclose this to them, this may be considered to be fraud.

We do not sell, lease, or rent your individual-level Personal Information without your explicit consent. As a general rule, 23andMe will not disclose your individual-level Personal Information to any third party, except under the following circumstances:

  • Partners or service providers (e.g. credit card processors or our contracted genotyping laboratory) process and/or store the information in order to help us provide, understand or improve 23andMe’s Services.
  • If you have consented for research, research contractors may access your individual-level Genetic and Self-Reported Information onsite at 23andMe’s offices for the purpose of scientific research, provided that all such research contractors will be supervised by 23andMe and subject to 23andMe’s access rules and guidelines.
  • If you have consented to use of your individual-level data in the Research Portal feature, qualified researchers (who must comply with certain requirements) may access your individual-level Genetic and/or Self-Reported Information for the purpose of scientific research, which could lead to commercial use.
  • We are required to do so by law or we do so in coordination with regulatory authorities (see the section below titled “Information Disclosure Required By Law”).
  • You have provided explicit consent for us to do so.

On a whole I don’t quite feel at ease with there terms of conditions or privacy statements. 23andme is a company and that worries me. If they were a charity or something like that, I would feel a slight bit better. How long will it be till they sell out on there users? You only have to look at what’s happened with Flickr to see the bizarre things that can happen.

So its not the information I’m worried about, its the way its stored and disclosed, now and into the future…

 

 

The first Manchester Quantified Self Meetup

Life logging

I can happily tell the world that Manchester’s first Quantified Self Meetup will be Friday 5th July at MadLab.

Madlab will update their calendar real soon but you can sign up using Meetup.com for free.

I will be giving a talk about my work time, foodfeed.us blog and fitbit to kick start discussions. Of course we’re looking for other speakers to join me and talk about there own experiences in quantified self.

When:
Friday, July 5, 2013 – 6:30 – 8:30PM
Where:
Mad Lab: 36-40 Edge Street, Manchester, United Kingdom

Details:
Manchester QS meetup consists of Show & Tell where people present or simply talk for 10-15 mins about their experience and experiments with self-tracking, quantifying and self-hacking whether it involves devices, applications or not.

This part lasts till about 8:30pm. We then move next door to Terrance or Common, which is an essential and integral part of the meetup, as important as the first part the ‘Show & Tell’. If you can join us, I encourage you to do so. Not only it’s always good fun, the conversations are equally interesting.

See your self in Quantified Self Europe

I had the pleasure of attending the Quantified Self Europe conference in Amsterdam. It was part of my idea to head towards conferences which are less mainstream and more edgy. Nothing wrong with the mainstream, but I love the idea of finding something quite raw.

The Quantified self I have been tracking for quite sometime and I now I got to realise all those self tracking things I do are just part of my lifestyle.

The conference was more of a unconference with up to 14 tracks running in parallel at some point. There are keynotes and sessions which are attended by everyone but most of the time your walking between sessions and talking to people.

As usual here’s my highlights from the conference…

Your Life Log my privacy

Life logging…

There was lots of talk about lifelogging or photologging. Although not quantifiable as such it came up  in discussions around the Google Glass project. The discussions were centred around the privacy issues of lifelogging using not only google glass. 5 people had been given lifelogging devices and had been walking around the conference for a day or so. They then showed the results on the big screen. The ethics and norms were discussed. Witney talked about being conscious of the device taking pictures and shifting her angle when talking to someone to avoid taking clos up pictures. I described my experience of being audio blogged at Future Everything and how it felt like loosing a sense after it was gone. The same was true of the lifeloggers. Somewhere in the discussion Glass came up again and again. People seemed to feel it would work because the norm when not using it is simply to put the glasses on the top of your head. Simple and elegant way of saying you have my full attention and I’m not logging this.

Interesting points… Photos created by them are not as such images but rather data. From the day, 4% were good images, 40% were too dark and blury and 56% were only useful for data.

Relationship logging

Mood and the yet unquantifiable

There was a clear move to towards the yet unquantified. Mood, emotion, context, relationships, sleep tracking, meme, dreamtracking, mindhacking, etc. One of my favourites was relationship tracking by Fabio Ricardo.

Fabio tracks who he’s talking to, when, where and about what in a series of handwritten note books. The data is quite simple but there is so much of it, it makes for some great insight into conversations and relationships which change over time. Of course I have alot of interest in relationship data but more from a different angle. Had a real good chat with Fabio about his findings and possibilities.

It was also good to see Snoozon also talking as they are working with Lucidpedia who are my choice for mydreamscape. If I can get them to do one thing correctly, that would be the way dream data is entered. Actually I found this app which does a much better job.

Food tracking

Food Tracking

There were a number of talks about food tracking for fitness and enjoyment. The problem is putting in that data so it can be quantified. There is a social pressure involved with taking pictures of food. On one half its good because your sharing and the act of doing so really helps the tracker. For example loosing weight through the fact of documenting. However standing up in a restaurant to take a picture of your food is still generally socially painful. Whats interesting however is all the meta stuff around the photo. The table cloth, the angle, who is with you, where, etc. Taking pictures of what your drinking is very boring unless its cocktails (and Rain did suggest I should take do some cocktail tracking)

But the hardest thing is still how you work out the calories, how healthy the contents is, etc. On top of that we have no idea the overall effect on the tracker. This is all tied deeply into health tracking which was a big theme but isn’t so important to my work.

Visualising data with Rain

Alternative uses for Microdata

I was happy to see big data discussed and talked about at length. But it was even better to see personal tracked data included in that category. I have always stood by the idea of personal tracked data as microdata of big data. But interestingly there was lots of talk about the tracking side (tons on sensors) of the quantified self and not much thought about the after effects.

Generally the data was being used for self analysis or to visualise. Rainycat talked about visualising the data using clothes to demonstrate the data.

Quantified Self Europe 2013

Of course my big thing was Perceptive Media and in fact when I kind of hijacked a Fujitsu Labs presentation. The questions and feedback was a lot better than I first feared it would be. Using microdata to drive and alter media seemed of interest to the people in the room, although there was lots of questions about how?

There was so much more to the quantified self conference, I haven’t touched the crazy amount of sensors and there getting so small. One thing which got me very excited was http://funf.org.

The Funf Open Sensing Framework is an extensible sensing and data processing framework for mobile devices, supported and maintained by Behavio. The core concept is to provide an open source, reusable set of functionalities, enabling the collection, uploading, and configuration of a wide range of data signals accessible via mobile phones.

It doesn’t take a lot to imagine the possibilities for prototyping perceptive media projects using Funf…

The whole conference was made of such great diversity of views and opinions, and I was blown away by the mixed of people.

The missing trackers

Who’s missing from the Quantified Self?

However the session which I missed all of but the last 10mins was, the missing trackers by Witney. Looking at the notes it was a very interesting discussion about the ethics of self tracking and sharing. When I joined later it had turned into a debate about identity and how to put forward the Quantified self in the best light. There seems to be a split of view of how to best promote the Quantified Self movement. Is it best done through the numbers and hard data or through the stories and experiences.

I chimed in with the answer being the stories and experiences, data will loose most people while a good narrative will always attract and inspire people.

Quantified Self Europe 2013

We all Track…

To be honest by the end of the conference I was amazed at the amount of things (media, food, steps, work) I track had not really thought about before. Thinking next year I could confidently give a talk about an element of self tracking, although I’d prefer to come back with some Perceptive Media demos.

I was also interviewed at the conference as you can see at the top of the post. I think it went rather well, except half eaten through an apple and really wanting some water. I did have a shock in the morning when coming down to breakfast. One of the ladies behind the reception said they had heard me on the local radio station. Turns out the local station watch the local hashtags top10 and found the interview and decided to use it. I won’t touch on the licence terms but its good to hear Perceptive Media went out to most of Amsterdam.

The whole movement can seem a bit like a low key cult with people talking about self improvement through data. But I felt welcomed and there’s plenty of rational arguments back and forth. People were open and happy to stop and talk about there self tracking projects or ideas to improve self tracking.

I went away inspired enough to setup a Manchester Quantified Self group, so look out for more details about that real soon.

This movement is certainly on its way up and out to the mainstreamsee you next year?