There is something ever so unique about Alison, my loving partner. She is AuDHD (Autistic and has ADHD). Although she hasn’t had an official diagnosis, shes is on a very long list to get these (7 years for ADHD she has been told).
If you were to meet her, its unlikely you would ever know she is AuDHD because shes highly masking through life. Masking is exactly what it sounds like and its super draining. I couldn’t even really understand how draining without Alison breaking it down for me.
I also took the test Autistic spectrum test Alison mentions and got these results. As you can see mine is quite different from her’s.
Ultimately I stand with her, proud to be her partner and I’m so glad she wrote the post not only to friends and family but to the public.
Alison is wonderful, creative, loving and a joy to be with. The mix of neurodiversity, life experiences, modern values and her personality means our relationship is full of mainly ups and some downs (which relationship isn’t?). I certainly didn’t expect the dopamine filled date nights!
Neurodiversity is full of stereotypes and misunderstandings. Some of it is ignorance but some of it is deliberately offensive and I’m looking at mainstream media. The social media space has its own problems but you are getting first hand perspectives which are sometimes interesting. Something I might pick up on again in a future blog post.
At the start of March, the Mozilla Festival 2021 started for 2 weeks of Mozfest joy. Unlike previous years this was the year it went completely virtual. There was a lot of concerns how it would work in a virtual space? But we didn’t need to worry, it kinda worked.
I got a early bird ticket so the schedule was opened up to people like me. It was extensive and downloaded all the calendar events for sessions I was interested in. Unfortunately I missed the book a seat part and when I went back weeks later most of it was booked up (my own fault).
My calendar during the first week of Mozfest
The Mozilla team worked very hard to keep the feel of Mozfest with a central place to start (the Plaza), the schedule with all the sessions, a number of social spaces (Mozilla slack and spacial chat), skill shares everyday and art/media tracks running throughout the whole 2 weeks. It was full on, just like Mozfest always has been. Its FOMA overload, but don’t worry there is a help desk – which seemed to be almost 24hours a day via slack.
I did go into a couple spacial chats and check out a skill share but most of my time was sat on zoom and many miro boards during sessions. To be honest I have a love hate relationship with miro but I finally got around to half liking it once I spent time with it for my own session. I did find miro bugging me to signup kind of annoying however.
One shame this year was the Mozhouse events seemed to be dropped from the schedule. This meant the publicspaces conference was missed from the schedule, although it was scheduled around Mozfest months ago. The festival has always been a big magnet for people and the 3rd party events which sit around the festival for example 2 years ago.
Because Mozfest was over 2 weeks, I paced myself and made the decision to carve out time for the festival. It was a good idea as my working hours were running to about 10hrs a day. Luckily most of the sessions had a hour break between them, allowing time to catch up with emails, slack and other work stuff.
Sessions
Sessions ran from a early 7am – a late 11pm GMT, hopefully catching a lot of countries around the world. I imagine over that 14hours, only New Zealand might have been tricky to attend sessions?
I ran a workshop/session during the 2nd week, which was interesting as chrome took down most of my display in a GPU bug I reckon. There was also the neurodiversity art work but I didn’t get enough entries to make something interesting unfortunately.
In total I went to 45 sessions. Here are some of the highlights in the sessions I went to.
I left project immerse to the very last day and was my last Mozfest event I did. Lance Weller blew my mind with things I have never seen Miro or Zoom do before. The future of immersive virtual theatre, I reckon so? I wish I could blog about it but I don’t want to spoil it. Lance also has a ongoing virtual show which I’m signed up to for April. It was fantastic end to 2 weeks of the Mozilla festival.
Lasting thoughts
The 2 weeks of Mozfest was great. It was a shame some of the sessions which claimed to be full were not. I noticed this changed a little bit later but I missed the social aspect, which slack and spacial chat just doesn’t cover. I quite liked the vibe of BarCampManchester 10 which could be done if narrowed down by the spaces. I noticed Creative AI had aspects of this but its something which could apply more widely if next year is the same?
There is a question which came in 2017 when Mozilla picked Slack over Matrix & Mattermost (which they were using internally). The questions comes up again, about using Zoom, Miro, Slack, etc. Like the publicspaces conference, balancing the practicalities with the values is hard work. But maybe next year if its virtual/hybrid, Mozilla could really lead the charge here.
When I first knew it was going to be 2 weeks (well really 12 days), I gulped but it worked out well. I never felt rushed and having most of the sessions recorded is super handy, as I’m finding now watching the ones I missed (plus I found the youtube secret playlist which means I can easily watch them back on my chromecast). Not every session was recorded of course and its a little strange when the breakout sessions happen. Ideally the recording should have been paused but the whole festival is community focused and I’m happy its not clean cut because that would have gone against the ethos of the Mozilla Festival.
Talking about the community, it was great to see a minimal amount of sillyness/zoombombing. Also the welcoming of so many different people, cultures, languages, etc. This was also the year when neurodiversity really kicked into high gear!
Where does the festival go from now, is a big question…
I’d like to see a hybrid conference next year. I certainly want to see a combination of the reach of Mozfest 2021 with the social parts of the last 10 years. However, please Mozilla keep the pretext system as it worked so well and hopefully we can finally have a permanent record of all the sessions over the years (one of the things I quite liked about using Github)
Big thanks
Massive thanks to everyone who made the virtual festival so good (especially looking at you Sarah & Mark!). Those working behind the scenes making sure things run smoothly. To all those spacewranglers who likely didn’t know if it was going to be in person, hybrid or virtual. Of course all those people who ran the sessions.
Really making good on ethos of… Arrive with an idea, leave with a community!
I started a physical mindmap on Saturday morning in the neurosiversity space and hung up information from the dyslexic advantage book, something I have written a lot about. I then invited the public to read and write on postage tags what they thought the advantages of dyslexia look like. These were hung up for others to read and explore.
The Dyslexic Advantages: MIND strengths
Here is the document I wrote if you want to read the MIND strengths in more detail.
I left it over the weekend and let people just add more and more. I also had some great conversations with different people about the advantages. One lady didn’t know there were advantages and lived with dyslexia all her life. As a whole lots people were correctly diagnosed at University and College, which is the norm as the book says. I think I met about 4 people who were diagnosed in School.
I have some great photos and when Mozfest finished I took them with me. Reading them in full it was quite amazing to read.
Here’s the almost complete list (I couldn’t read some of them and I removed the duplicates)…
Right maths, wrong numbers!
Creative
Sequencing
Non-reading information sensitivity
Interconnected thinking
Spatial thinking
Network of thoughts
Advantages?
Telling stories
Attention to details
Improvising & Creativity
Pattern recognition / Recognition pattern
Ability to tell stories
Link themes
Empathy to others
Empathy
Lateral thinking
Concept formation
Storytelling
Crasy?
Mapping strengths
Roles can lead to success
Future prediction
Understanding
Glad I did it and the conversations were amazing, shame I couldn’t be around in the ND space all weekend. Massive thanks to the Spacewranglers of neurodiversity for accepting my session and helping out.
I wrote a blog about neurodiversity after Kate included me in a tweet about a mother and daughter talking on the listening project. My blogs are shared into Facebook and Marie added a comment, which was simply a picture.
That picture (same as above) spoke volumes. After looking it up, I found the source.
“Ordinary life does not interest me. I seek only the high moments. I am in accord with the surrealists, searching for the marvelous. I want to be a writer who reminds others that these moments exist; I want to prove that there is infinite space, infinite meaning, infinite dimension. But I am not always in what I call a state of grace. I have days of illuminations and fevers. I have days when the music in my head stops. Then I mend socks, prune trees, can fruits, polish furniture. But while I am doing this I feel I am not living.”
Anaïs Nin, The Diary of Anaïs Nin, Vol. 1: 1931-1934
This is something I absolutely subscribe to. You only have to ask friends about my dotted past and look at some of the friends I get up to shenanigans with. I never seeked to fit in or follow other people’s limited constructs of what I should or not do; and to be fair I’ve never been very apologetic about it. Of course it’s not all tea and honey, but it’s just the way I am. Said on the eve of getting undressed on TV.
I haven’t really heard the term neurodiversity before and from what I read, its a controversial term for many reasons. But dyslexia would be covered under Neurodiversity.
Neurodiversity is an approach to learning and disability that suggests that diverse neurological conditions appear as a result of normal variations in the human genome
This term was coined in the late 1990s as a challenge to prevailing views of neurological diversity as inherently pathological, and it asserts that neurological differences should be recognized and respected as a social category on a par with gender, ethnicity, sexual orientation, or disability status. Neurodiversity is also an international online disability rights movement that has been promoted primarily by the autistic self-advocate community (although other disability rights groups have joined the neurodiversity movement). This movement frames neurodiversity as a natural human variation rather than a disease, and its advocates reject the idea that neurological differences need to be (or can be) cured, as they believe them to be authentic forms of human diversity, self-expression, and being.
Interesting stuff, I guess a label is always going to cause people to shout fowl. But for me its nice to have a label for mind based abilities (or disabilities if you prefer). Regardless, the diversity of ideas and thoughts still applies…
