Dating a highly masking AuDHD (Autistic and ADHD) woman

Ian and Alison together in the sun

There is something ever so unique about Alison, my loving partner. She is AuDHD (Autistic and has ADHD). Although she hasn’t had an official diagnosis, shes is on a very long list to get these (7 years for ADHD she has been told).

If you were to meet her, its unlikely you would ever know she is AuDHD because shes highly masking through life. Masking is exactly what it sounds like and its super draining. I couldn’t even really understand how draining without Alison breaking it down for me.

Recently she decided to write about this all in a public Facebook post.

My results from the Autistic test

I also took the test Autistic spectrum test Alison mentions and got these results. As you can see mine is quite different from her’s.

Ultimately I stand with her, proud to be her partner and I’m so glad she wrote the post not only to friends and family but to the public.

Alison is wonderful, creative, loving and a joy to be with. The mix of neurodiversity, life experiences, modern values and her personality means our relationship is full of mainly ups and some downs (which relationship isn’t?). I certainly didn’t expect the dopamine filled date nights!

Alison and Ian hang from the London underground ceiling above a tube train.

Neurodiversity is full of stereotypes and misunderstandings. Some of it is ignorance but some of it is deliberately offensive and I’m looking at mainstream media. The social media space has its own problems but you are getting first hand perspectives which are sometimes interesting. Something I might pick up on again in a future blog post.

Till then, have a read of Alisons post and share with others.

Continue readingDating a highly masking AuDHD (Autistic and ADHD) woman

Public Service Internet monthly newsletter (July 2023)

Woman typing on laptop while sitting on a sofa in a coffee shop

We live in incredible times with such possibilities that is clear. Although its easily dismissed seeing students using AI to learn languages, the malicious use of AI and Meta’s Voice AI,

To quote Buckminster Fuller “You never change things by fighting the existing reality. To change something, build a new model that makes the existing model obsolete.

You are seeing aspects of this with the EU AI act, Amazon prime dark patterns finally being acted on and a look at the tangible risks of AI.


PublicSpaces: For a collective internet?

Ian thinks: I am biased as I took part in this years Publicspaces conference, however this is a conference worthy of watching once the 2023 ones are added to the others in peertube. Some highlights include Ruha Benjamin, Eli Pariser, Public broadcasters and private social networks, Building Digital Commons.

Who added the creepy?

Ian thinks: I found this interview with Dave Eggers worthy of a mention. The EFF push him on his thoughts and get quite a lot back. I was struck by the line “…but who decided to insert the creepy?”

What is the public service view on AI?

Ian thinks: This interview with Acemoglu is quite enlightening and highlights the critical question of how would AI & ML operate and look like if it wasn’t about increasing the bottom line or hoovering up data?

Ian thinks: Murthy in this interview has so many good points and ultimately links the possibility of loneliness with basic needs like hunger and thirst. I’m sure many disagree but as described in Turkle’s Alone together, its clear there is an unbalanced use of technology directly contributing to something.

Ian thinks: Following the previous link, Mozilla’s research deserves more attention. Consent is critical for trust and you would have thought the mental health industry would trust as their top priority? Maybe I’m naive and the commercialisation of the industry is self-evident.

Re:publica 23, its all about Cash? (day 1, day 2, day 3)

Ian thinks: Every year I see such great talks and come from Republica, most are in German but there are also a number in English. I am pretty sure they will separate the talks in time.

The challenges of openness within the social space

Ian thinks: I needed to add my thoughts on this challenge against openness by those leading the charge for openness (yes confusing). I understand the potential but its more likely Meta will close their instances to the fediverse, lets not be that person ahead of time.

Digital nomads reshaping the cities

Ian thinks: As someone looking to be a digital nomad, this is a hard pill to digest. I certainly would like to see more meaningful exchange with the locals rather than dive in an carve out a new bubble?

Get Rich or Lie Trying

Ian thinks: This book has come up so many times, but it wasn’t till I met the author at MozHouse Amsterdam. I decided to put it on top of my list. Symeon digs deep into the social dumpster fire and clearly points out the damage which has been done at all levels.


Find the original here – https://cubicgarden.com/2023/07/01/public-service-internet-monthly-newsletter-july-2023/ and the archive here

Public Service Internet monthly newsletter (June 2022)

Digital Literacy for Seniors

We live in incredible times with such possibilities that is clear. Although its easily dismissed reading how Paypal wrote the crypto playbook, seeing the incredible insecurity of smart locks,  and is Bluesky going anywhere soon?

To quote Buckminster Fuller “You never change things by fighting the existing reality. To change something, build a new model that makes the existing model obsolete.

You are seeing aspects of this with the FT mentioning Mastodon, The right to repair research and the Lumous system identifying all those hidden camera in hotels.


Our password-less future is one step closer

Ian thinks: Everyone is throwing their weight behind FIDO and its looks extremely useful. Finally something which is user friendly, easy to use and secure.

Can you really trust that mental health app?

Ian thinks: Mozilla’s research into those apps many people used during the pandemic and varies lockdowns is simply a horror story. There has to be a better solution which doesn’t rely on misplaced trust?

Period tracking apps are tracking you

Ian thinks: On a similar note to the previous one, the consumer reports article is full of very useful tips to protect you. These are good for almost every single app I would say.

Dove uses deep fakes to really tell the story

Ian thinks: Dove’s self esteem project is consistently doing great things for society. Deep faked mothers talking to their daughters while sitting next to their real mothers is just incredible and so well thought out.

Proton taking on Google with a privacy edge

Ian thinks: Andy Yen Proton’s CEO gave a talk in the European Parliament hinting at this announcement. Taking on Google with a non surveillance business model is intriguing as scale isn’t as critical for success?

The time is now says PublicSpaces

Ian thinks: The Dutch collation, Publicspaces had their 2nd conference in May and a good number of the English language sessions are well worth your time. Always challenging and full of good threads to tug on.

Literacy, the forgotten side of our digital world

Ian thinks: This is a sobering and some what recently forgotten side of the digital revolution. If left to market forces, I can’t see things getting any better. Only a public service internet can really make the difference.

Regulating Algorithms?

Ian thinks: Although the register adds a level of snark to the idea, there is something which does speak true. Regulating algorithms could really provide a level of trust, comfort and agency which just doesn’t exist right now.

Education to promote agency?

Ian thinks: I love these projects explaining and educating diverse communities to take control of the technologies to avoid being the disadvantaged by them.

Learning the lessons of the past for the future of the internet

Ian thinks: In the middle of the hype, there is very little looking back and learning the lessons of previous generations. Dare I say it, those who don’t learn their history are doomed to repeat it.


Find the archive here

Community parks for the community of inner Manchester

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Cities are always in flux however, our values/needs as humans don’t flux so much. Green space is important to us, even a total city boy like myself loves green nature space at times. This is beyond gentrification and more about city planning. Something Jane Jacobs knows plenty about.

Its clear green spaces are essential and lets say Manchester like London doesn’t have a lot of them. There’s got to be a connections between the mental health epidemic and the state of our biggest cities.

There are 3 spaces in the very local area which have been marked for building of some kind of redevelopment.

  1. Former Central Retail Park Great Ancoats Street Manchester M4 6DJ
  2. Green space at New Islington tram stop
  3. Mayfield train depot park plans

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I joined the talk yesterday at Central Retail park

From friends of the earth Northern Quarter

Currently Manchester City Council plans to turn the old Central Retail Park on Great Ancoats Street into a 440 space carpark with the application going to planning on 22nd August, we have until 17th August to make our voice heard.

This is a 10.5 acre space, half the size of Whitworth Park.

There will around 1000 cars moving in and out onto already busy Great Ancoats Street. This will increase pollution including known carcinogens such as Nitrogen Dioxide, in a city of appalling childhood asthma rates and one which consistently ranks amongst the worst air quality in Europe.

This space is right next door to a Primary School.

This seems in total contradiction of Manchester’s campaign for clean air when Manchester City Council has declared a Climate Emergency.

Legally the land is owned by Manchester City Council making it public property, meaning you can walk on it. The fence around the old units is fenced off and there is a security which keep an eye on the space; but the advice from the talks was to build a park on top of whats there already.

Currently the plan is to use the space to show potential use. Events, guerrilla gardening, market, skateboard park, etc. I’ve already been thinking about a massive community bring your own BBQ type event – if I could sort out the toilets?

Anyway you can learn more at treesnotcars.com, and if you get a chance do drop in and see the space and the chalked ideas people have for it.

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Familiar stranger and wellness

milgram familiar stranger

Theres been so many times in the past when I blogged about the breakdown of social bonds between strangers. One of my favourite books is Sherry Turkle’s Alone Together, I still need to read reclaiming conversations. The smartphone is a easy target to point at when thinking about this all.

The thing I hadn’t really considered is the effect of the mental ill/wellness epidemic maybe slightly caused by loneliness.

This is why I find things like Uber quiet ride pretty scary when you take the long view. Which of course Uber isn’t, as they try and make public transport redundant as its not convenient enough for our lives.

You can outsource pretty much every aspect of irritation in your lives. But you can’t outsource loneliness, or pain. Like a dystopian sci-fi plotline, we are allowing Silicon Valley to make our lives as convenient and seamless as possible.

But there’s an app for everything now, which means no more phone calls to the pizza shop, no chit-chat while waiting for the bus. The little white earbuds, and their more aggressive, noise-cancelling cousins, are shielding us from this terrible outside world.

And we are lonelier than ever. Our communities are disintegrating, whether it’s the corner store bought by a billionaire developer or churches being replaced by Instagram or the fact that I have never met or even seen my nextdoor neighbour. We are at a crisis point.

You could easily point the finger at Airbnb too, something which was about people sharing homes with strangers; now is about hotel like experiences. Airbnb haven’t helped things wither with their plus listings. Don’t get me wrong I understand, but airbnb originally was different.

I keep saying it but noticed I don’t think I have ever wrote about it so directly.

Public transport along with lots public services could be the decider between a epidemic of loneliness. I mean where else are you going to experience familiar stranger and that essential head nod. Rubbing shoulders with strangers clearly is good thing in the long run, you wonder why more people are flocking to our over crowded cities? I think there is something in the social object theory and I’m not the only one. Bonding with strangers builds friendships, builds neighbourhoods, building communities, which builds societies?

The data is still not 100% but I think this is essential research material.

Wired Live: Why We Need to Talk More About Mental Health

When rapper Professor Green was a kid, the word ‘mental’ was chucked about carelessly – but the phrase ‘mental health’ was something he never heard mentioned. When he was 24, his dad took his own life – and there began a course towards greater self-awareness about mental illness and understanding of the need to talk about mental suffering collectively. He speaks to journalist Stephen Armstrong about his work since then, and why things still aren’t getting better.

I found this really good and refreshing to hear. I know very little about Professor Green but its really good to hear his thoughts, in this short wired live interview.

Ambient intimacy the new loneliness?

A few weeks ago I took part in the eye contact experiment in Sheffield. The purpose was to connect with a fellow human being in a way we usually avoid in modern society.

I have already wrote about the use of Mobile technology in Japan and crossed it with the selfie craze. But I have to admit although the selfie/narcissism was bad. There was a low level almost ambient undertone to the silence of people looking at rectangular LCD screen.

Japan is always known as way ahead of the curve. When most of us were still using desktops and laptops to connect the internet, residents of Japan were using their phones. Theres many other examples but I spotted something which deeply worries me. Sherry Turkle’s connected alone was playing out everywhere you went.

I was in the queue for a rollercoaster and 4 guys were standing in silence through out the whole 40-50min queue. There were each transfixed to their phones not uttering a single word till we finally got on the ride and then they were best buds, laughing and chatting away. I saw them again later (the theme park wasn’t that busy and isn’t that big – about the size of Thorpe Park) and it was more of the same.  They may have been playing the same game but together they were alone.

Alone together

Sad as it may be (you could say its part of the Japanese culture, but I’m not so sure), you are seeing more and more of this. And its not just a age thing. The online world can be very seductive and some people forget the offline world for many reasons. Maybe things are difficult there, things are not going so well, they can be somebody else?

Sounds familiar right? Some people have been calling it ambient intimacy, something I heard a lot time ago but hadn’t really stop and thought about.

I  forgot the term, which I saw as the logical conclusion of what I saw in Japan and seeing to a lesser degree here. I first wrote about it when listening to Leisa Reichelt talking at the future of webapps 2007.

This thought catalogue piece sums up quite a bit is the new loneliness

Our generation of sadness and loneliness is of the unchecked variety. Of wallowing. Of letting ourselves be disconnected from both others and ourselves. Learning to soothe more than heal. Learning to put a band-aid on problems instead of working through and solving our problems. If something is not immediate, we don’t want it, even if it’ll make us stronger. We’re not growing as people, not really. We’re shoving away “bad feelings” we don’t want to face by clicking, refreshing, scrolling until we’ve numbed ourselves out enough. It’s addiction.

I was talking to a friend recently and she was telling me about the massive effect grindr is having on the gay men of Manchester. The once vibrant gay village of canal street is now full of hen parties and hetrosexual men chasing them. The gay men so addicted to the new reality of grindr, they don’t waste time meeting/socialising down canal street, when there is a sea of faces and other parts of the body on the comfort of your screen. Of course there is human contact but its short lived, fleeting but also highly charged and very exciting.  If its not, don’t worry theres other fields to go explore and why not?

This is something I talked about during my ragged talk.

In years, decades to come will we see the ambient intimacy the same way as we see smoking now? Or if Adrian Hon is right, eating meat?

I’m confident that in a hundred years, eating meat will be regarded in the negative way we now view racism or sexism – an ugly, demeaning, and unnecessary act. Like smoking, it will simply fall out of fashion because we’ll find better and healthier alternatives, although we’ll still occasionally eat humanely reared-and-killed animals. Note that I still eat meat even though I should know better.

If there was one picture which sums up this slow backlash, it has to be this one… removed.

Removed

As the author says…

The joining of people to devices has been rapid and unalterable. The application of the personal device in daily life has made tasks take less time. Far away places and people feel closer than ever before. Despite the obvious benefits that these advances in technology have contributed to society, the social and physical implications are slowly revealing themselves.

I saw it a while ago but frank reminded me of the picture while we were talking about the eye contact event.

There was a number of talks at Thinking Digital Manchester which strayed deep into this area., including our own workshop.  Authenticity was the word of the moment. Be yourself and talk with a human voice. Something the Cluetrain Manifesto talks a lot about.

I have bounced back and forth and about this whole thing, creating many revisions (62 to be honest) and drafts of this blog post.

Part of me wonders if this is just the new reality and I’m actually just getting old?

Who couldn’t be excited by the new possibilities to be connected to many people at the same time? Jason Silva called itcollapsing geography with cellphone wormholes. However this also pulls us out of the moment (must finish reading Douglas Rushkoff’s Present Shock) creating physical barriers with the people we spending time with. Maybe its the intent or even the lack of intent which is the problem?

Like checking your phone at the table, your subconscious intent is that the current situation isn’t interesting enough to fully engage? Or a sign we feel strangely lonely?  The fear of missing out is a double edged sword, and is a really strong motivator in this all. Then throw in the paradox of choice and you have a recipe for long term problems. This is what I thought when I first heard the term present shock to be honest.

Mozfest Global Village

This was some of the motivation behind a short pathway of two great sessions at Mozfest 2015. Hacking Mental Health: Changing Views in Tech and Happiness in the digital era. (reminds me of  The Practice of Happiness workshop by Bobby Paterson at Thinking Digital 2011). We even ran our own eye contact experiment in the crazy space of Mozfest.

Eye contact at Mozfest Global Village

With all this playing on my mind (and the fact its a link between all the events over the last few weeks)…

I bought a copy of Alone Together and Reclaiming Conversation: The Power of Talk in a Digital Age. I decided enough with the drafts, I’m putting this thought on hold for a further blog post or maybe a discussion some day?