Category: just-plain-life

Dating a highly masking AuDHD (Autistic and ADHD) woman

Ian and Alison together in the sun

There is something ever so unique about Alison, my loving partner. She is AuDHD (Autistic and has ADHD). Although she hasn’t had an official diagnosis, shes is on a very long list to get these (7 years for ADHD she has been told).

If you were to meet her, its unlikely you would ever know she is AuDHD because shes highly masking through life. Masking is exactly what it sounds like and its super draining. I couldn’t even really understand how draining without Alison breaking it down for me.

Recently she decided to write about this all in a public Facebook post.

My results from the Autistic test

I also took the test Autistic spectrum test Alison mentions and got these results. As you can see mine is quite different from her’s.

Ultimately I stand with her, proud to be her partner and I’m so glad she wrote the post not only to friends and family but to the public.

Alison is wonderful, creative, loving and a joy to be with. The mix of neurodiversity, life experiences, modern values and her personality means our relationship is full of mainly ups and some downs (which relationship isn’t?). I certainly didn’t expect the dopamine filled date nights!

Alison and Ian hang from the London underground ceiling above a tube train.

Neurodiversity is full of stereotypes and misunderstandings. Some of it is ignorance but some of it is deliberately offensive and I’m looking at mainstream media. The social media space has its own problems but you are getting first hand perspectives which are sometimes interesting. Something I might pick up on again in a future blog post.

Till then, have a read of Alisons post and share with others.

Continue reading “Dating a highly masking AuDHD (Autistic and ADHD) woman“

The good things which come when putting your hand up?

The Panel at Republica 2024 recreating the Neuralink press conference

For a long while now (since my brush with death) I have been putting my hand up for many different things without really knowing whats going to happen. The one from TedXManchester is one I talk about a lot (8.9 million views!)

Just recently at Re:publica 2024, I took part in a panel titled Elon Musk Utopia.

Neuralink is one of the least known companies founded and headed by Elon Musk, this is his BCI initiative, a brain-chip that will make us one with the machine, one with one another, allow the blind to have superhuman vision, negate the need for language and make us all transhuman, just in time to contend with the AI ​​gods we are creating simultaneously. If that sounds like (bad) science fiction, as well it should, but it’s also the vision of Neuralink’s founders.

Musk and Neuralink informed the public of their activities, early results and utopian aspirations in August 2020 on a live stream press event. Musk invited on stage the co-founders and leading team, scientists, engineers and venture capitalists, all answered questions about various technical aspects, and then they took one final question: one by one they all envisioned a “Neuralink future” and gave their personal aspiration, what is the use case they most highly expect and anticipate. The answers went from bewildering and bizarre to outright frightening.

The panel (with some audience participation) will read the different answers given at the Neuralink press event and discuss the future represented by these dreams/nightmares. A conversation about man/machine interfaces, artificial intelligence and religion, creativity, psychedelics, video games, telepathic consent, hope and death.

As you can see in the video which was filmed (not the conference filming), there is a request for someone to join the panel. Of course without even thinking, my hand was up and waving around. From memory I was the only one, just like the TedXManchester event.

I hadn’t really thought I’d be reading out a script, which is a bit of a nightmare for me with dyslexia. But regardless, I was committed, ultimately had good fun and enjoyed the Q&A afterwards.

If I had thought it through, I may not have put my hand up but so glad I did… again!

 

Wonderful chocolates shared

I use to share notable chocolates on twitter and my blog in the past.

However with the Fediverse and one of my favourite platforms is pixelfed (like Instagram without all the crap, algorithmic nonsense, enshittifcation and unhuman design).

So with this, I started posting select Chocolates I recently enjoyed there

You can also comment and do the usual social media things there, but safely from your own fediverse account.

Look forward to the feedback

Professor Guy Leschinzer interview

During the Covid pandemic, I did a lot to sort out my sleep. I also read a few books about sleep including the popular Why we sleep by Matthew Walker and The Nocturnal Brain by Guy Leschziner. Then said…

I’m sure many will disagree, but I’d recommend The Nocturnal Brain over Why we sleep. Although I will admit it is a harder read, due to some of the experiences explained in some detail.

Its not a criticism of why we sleep but the nocturnal brain had so much more depth and watching this full interview with Leschziner, really confirms the level of depth and experience he has witnessed.

In the EU or UK? Opt out of Meta using data to train AI

Facebook form for opting out of data being used to train Meta AI

I heard Meta were planning to change their EULA/Terms of use and planned to opt out in anyway possible. But I was nicely surprised to see not only the EU but UK can opt out using the short form above. Although I think it is cheeky to require a reason…

I assumed the EU would be covered but the UK would be left out. Thank goodness for GDPR

You can learn a lot more by reading this how to guide or watching this video.

Update just 55mins later

I got this email from Facebook/Meda

Hi Ian,

We’ve reviewed your request and will honor your objection. This means your request will be applied going forward.

If you want to learn more about generative AI, and our privacy work in this new space, please review the information we have in Privacy Center.

facebook.com/privacy/genai

This inbox cannot accept incoming messages. If you send us a reply, it won’t be received.
Thanks,
Privacy Operations

My first mushroom based cocktail

Mushroom cocktail with mushroom juice in a bottle in the background

A while ago I made my first mushroom cocktail and it was delightful, I always meant to post it but its sat in my drafts for a long while.

I took the recipe from here, and made some changes to cater for my vegan partner.

Ingredients

  • 25ml Dried mushroom
  • 50ml Vodka
  • 25ml Lemon juice
  • 10ml Agave
  • Ice cubes

Method

Boil the Dried mushroom in water for about 45mins. Then pour into a container and put in the fridge to chill.

Later at the party, add 2 shots of vodka (50ml), 1 shot of the mushroom broth/juice (25ml – adjust for strength), 1 shot of lemon juice (25ml), 10ml Algave syrup to a cocktail shaker and add ice cubes. Then shake away.

Once you are done, filter the drink into a martini glass and enjoy!

Endemic Covid-19

Mozilla keep cup, positive covid tests, mug, paracetomol and other mdedication on a wood table

Just recently I caught Covid19 for the second time. It was once again while in Europe working (never caught it in the UK funny enough). This time I didn’t get the awful Covid toe, which was a big relief!

It is super strange, I caught it between attending the PublicSpaces conference and getting setup to run the ethical dilemma cafe at Mozhouse Amsterdam. Now to be fair I did spend a lot of time on Amsterdam’s public transport,went to a Dutch castle with lots of tourists and had a great time at Walibi.

Regardless, I did feel a bit tired from the lack of decent sleep over the last few weeks (Not spent much time at home recently) but I also felt cold but didn’t really think about it. The Mozilla team decided to take Covid tests and I did so not really thinking I would be positive.

Then it happened, 2 very red lines – a total surprise!

That was the moment I decided not attend Mozilla house Amsterdam because its a place where you talk to a lot of people and felt deeply responsible for passing on Covid on to others. I also decided to stay in my hotel room and only venture out for breakfast and to a supermarket which was about 15mins walk away. Both with a mask, which I happen to have in my laptop bag since 2021.

Looking from Amsterdam station to North Amsterdam
As close as I could get to Mozilla House Amsterdam

After a few days and a second covid test, I changed my plans and took a earlier flight back to the UK.

I did find it strange how people reacted to me wearing a mask, although I was trying to be a responsible person (No judgement on anyone else). I had assumed people would think I was protecting them as I might have Covid? There was one instance in the hotel lift when I informed a man they might want to wait as I have Covid. He decided to not worry about it but commented it was really good I was wearing a mask and most people don’t bother?

I know all the Covid policies have pretty much gone and we have moved from pandemic to endemic. Like myself, there was no way of knowing I had Covid till I tested. I wouldn’t have tested if I didn’t have access to tests and had a reason to test.

Its all quite a interesting catch 22…

How am I? I’m tired, slower but active. Cough has gone and I found my out of date Covid tests are still picking up on my positive Covid, although a year old. But I do have the new ones to confirm when I do believe I’m negative again.

Not that it matters I guess?

20 years at the BBC today

Media City UK

Its incredible to say those words but in April, I have my birthday and also my work birthday.

20 years ago, I accepted the position as a XSLT developer for BBC WorldService in London, I did apply for two positions, the other one under BBC New Media central, which I did also got a offer for, but turned down.

20 year with some great and challenging moments. Everything from setting up RSS on 40+ language services BBC Worldservices, BBC Backstage, Perceptive Media, Perceptive Radio, Databox, Living roon of the future, Public Service Internet, Human values, Adaptive podcasting and so much more. Some of the best stuff has come from non-sanctioned collaborations and works, for example with BBC & Mozilla’s ethical dilemma cafe. beebcamps. barcamps. etc…

MyPDS and Perceptive Raido
MyPDS and Perceptive Raido in the museum of science and industry in Manchester (personal highlight)

Although there is lots of good, there has been a lot of frustration in those 20 years. Moving a public service corporation known for broadcasting and news to one leading the future of the internet, is something I compare to the innovators dilemma. My lack of interest in TV has been tricky but always thought it made sense if I focus on a public service internet.

In the last few months a lot of people I have worked with in BBC R&D, have left for new positions in other organisations. Some of them I have worked with for a long time and respect greatly (heck one saved my life).
I have been through many different BBC restructures and seen 5 different director generals (Mark Byford, Mark Thompson, George Entwistle, Tony Hall and Tim Davie) outline their plans for the future.
The pandemic changed working practice sometimes for the better in my own view and sometimes worst in other ways.

Being in the BBC R&D advisory team is still the best place for me currently. I still have the belief, its the place a public service internet can be realised in collaboration with others.

However, 20 years certainly makes you think… I didn’t plan to be at the BBC so long and certainly don’t plan to be around for another 20. I’m very aware of the industry changes but have an eye on where could be next? What ever I do, it needs to be to the benefit of a future public. My current research is focused on the future of social (not social media) something few organisations have the true time to look at in detail.