Better to know or to live in blissful ignorance?

23andme box

Following my brush with death I have taken a much deeper look at my family genes.

But one of the ultimate ways to know more is by signing up to 23 and me.

Although the idea freaks most people out, when you’ve been so close to death theres really little which can freak you out. So I have been considering the process quite a lot and looking through there material and some of the backstory of 23 and me.

Besides my thoughts of a world like Gattaca, I’m wondering if its better to know or live in a world of blissful ignorance? Although I do have to say blissful ignorance is part of the reason why I ended up in hospital. I do however wonder about 23 and me’s terms of conditions. There privacy statement is interesting too…

You may learn information about yourself that you do not anticipate. This information may evoke strong emotions and has the potential to alter your life and worldview. You may discover things about yourself that trouble you and that you may not have the ability to control or change (e.g., your father is not genetically your father, surprising facts related to your ancestry, or that someone with your genotype may have a higher than average chance of developing a specific condition or disease). These outcomes could have social, legal, or economic implications.

Genetic Information that you choose to share with your physician or other health care provider may become part of your medical record and through that route be accessible to other health care providers and/or insurance companies in the future. Genetic Information that you share with family, friends or employers may be used against your interests. Even if you share Genetic Information that has no or limited meaning today, that information could have greater meaning in the future as new discoveries are made. If you are asked by an insurance company whether you have learned Genetic Information about health conditions and you do not disclose this to them, this may be considered to be fraud.

We do not sell, lease, or rent your individual-level Personal Information without your explicit consent. As a general rule, 23andMe will not disclose your individual-level Personal Information to any third party, except under the following circumstances:

  • Partners or service providers (e.g. credit card processors or our contracted genotyping laboratory) process and/or store the information in order to help us provide, understand or improve 23andMe’s Services.
  • If you have consented for research, research contractors may access your individual-level Genetic and Self-Reported Information onsite at 23andMe’s offices for the purpose of scientific research, provided that all such research contractors will be supervised by 23andMe and subject to 23andMe’s access rules and guidelines.
  • If you have consented to use of your individual-level data in the Research Portal feature, qualified researchers (who must comply with certain requirements) may access your individual-level Genetic and/or Self-Reported Information for the purpose of scientific research, which could lead to commercial use.
  • We are required to do so by law or we do so in coordination with regulatory authorities (see the section below titled “Information Disclosure Required By Law”).
  • You have provided explicit consent for us to do so.

On a whole I don’t quite feel at ease with there terms of conditions or privacy statements. 23andme is a company and that worries me. If they were a charity or something like that, I would feel a slight bit better. How long will it be till they sell out on there users? You only have to look at what’s happened with Flickr to see the bizarre things that can happen.

So its not the information I’m worried about, its the way its stored and disclosed, now and into the future…

 

 

Someone once said, are you a misogynist…?

What's Wrong With You? Are You A Misogynist?

Love the project Someone Once Told Me.com and I had my own photo taken for the project.

The story is so odd and to be fair it was a very long time ago during those Crazy “Nappy night” days in Odyssey, Bristol (for those who have known me that long).

“I was in a nightclub in Bristol, where I was born. I was quite young and when you’re young it’s quite hard to talk to women. Most of my friends were just talking to girls. They pushed me into talking to a particular girl so I did. So I went up to her and said ‘So, did you see Brookside last night?’ She said this to me in reply, which was completely bizarre. I just had this look on my face like ‘What?’ Then she just walked away. I was like ‘Great. Never again.’

The story is true and I swear thats what she said, its not even like I didn’t hear her, I heard her loud and clear. Maybe she got the word mixed up but she certainly said it.

Of course I’m not a misogynist, my mother would nail me to the wall if she ever thought I was. I have worked alongside and for many woman in the past and even now. Not only that ask all the woman I dated if they sensed something slightly misogynistic about me. I honestly don’t think a single one would say, “actually there is something to it…”

If I remember correctly I think she was expecting something corny from me and when it didn’t come, she just found it odd and blusted out with the question before she walked away in shame, realising she had slated a guy for talking to her in a more human way than most.

The comments and Twitter are there if you agree with what this woman said to me…

Expecting a certain person to tweet, “sort out your problem with woman, Ian!”

Woman speakers at conferences

I had the pleasure of attending the one day barcamp nicknamed bracamp… It was a interesting take on a barcamp and although I signed up originally because Laura was a sponsor, decided to go ahead when  Hwayoung said she’ll invite me (you know the rules of girl geekdinners, woman can only invite a guy)

Anyhow I ran a session talking about a number of things including what is a geek… Somewhere in the running order I attended something which got me speaking up about woman speakers.

I know this has been all over the news about what happened in a conferences in the states but I wanted to echo Samantha’s thoughts

Diversity in tech is good. And not just for the sake of it, but because we need. more. techies.

I won’t disagree, but its not just techies we need… We need people who think differently…

There are two reasons why a diverse audience and speakers should be at least somewhere halfway down the agenda of any conference or panel discussion: First, diverse speakers represent a diverse audience, making minorities feel more welcome, thus potentially helping with increasing participation. Second, speakers from a different background might (might!) bring a different point of view to the conference, which helps making talks and panels a lot more interesting.

Yes it was a great idea having the girl geeks in residence at BarCampMediaCity and really worked for that event. I won’t lie, its good to see more people like yourself around and at Tech events its usually very bad.

In my opinion, at least “being aware of the issue” and making some effort is okay. If it turns out that no woman submitted a proposal and all the female speakers you’ve asked decline the offer, well, that’s bad luck.
digging for diversity can also be frustrating. It’s incredibly hard to convince non-white-males-aged between 25 and 35 to attend any ‘mixed’ event.

Yes I have felt this first hand.

I ran a series of event and for one of the last ones before it ended. One of them was a ignite style event. As you can see all the speakers are male but I tried to balance the speakers with women. I sent emails out and spoke to many woman about taking one of the spots. I must have contacted about 20+ woman for a couple places in the line up. I have the emails if anyone wants to do a freedom of information request on me (go ahead).

I even lost my cool a tiny bit with one (sorry to say and I did apologise moments later) who I know very well and knew could easily do it with a bit of a push, so I gave her a bit of psychological big up and even that didn’t work. I was willing to spend time with the lady in question to make sure she felt comfortable and happy about everything (because it would be the right thing to do), I think I need to find another way to encourage woman to get involved in future.

Any thoughts? I’m all ears… as always!

Peaktime trains vs Hotels

Overhead power lines

I can happily say I have to date never knowingly paid for a peak time ticket to London.

Even when going back and forth to London from Manchester for those meetings with the rest of the BBC, I just couldn’t do it.

Two questions bugs me around this…

  1. How can Virgin trains charge more than a hotel in Central London (booked within 24hours) for a peak ticket?
  2. Why is there peak time from 3pm – 7pm if you leave London but not the same if you leave anywhere else at the same time?

The current price of an Anytime peak return is £308! This means you can get on a train anytime and return anytime within a month. Even if you don’t need that level of flexibly, the cheapest peak time return tickets are roughly £217. Yes you can get 2 singles but there still roughly a total of £210 and you must go on that train there and back.

An Anytime off peak return is £77.30 with the same return anytime within a month. Giving you plenty of flexibility (just remember to avoid the 2nd peak time).

To be fair all these prices are based on a booking within a month of travelling and are for Virgin Trains to and from London. If you book over a month before the prices do lower and 2 months before can be reasonable. Just a shame the discount fares are not that great.

So saying all that, what I worked out early on while at BBC Backstage was, if you take a off peak train and stay in a hotel, its still cheaper than a peak time train fare. Yes believe it or not, and its not one of those crappy unknown hotels, I mean the likes of Holiday Inn, Ibis, Ramada, etc. So not your elite or boutique level hotels but a good hotel with a good bed and breakfast. Plus I don’t mean booking way in advance, I mean booking within 24hours.

The only issue is you have to give up your night before to catch the off peak train.

For many this is a absolute no way/no chance. Its hard enough going down to London to spend a night or two away from the family, let alone prolong it by adding more time away. I totally understand and who am I to judge, but for someone like myself, this is a great opportunity to save some licence fee, sleep soundly over night in a hotel and wake up early for that 10am meeting. Sometimes I even get the chance to meet up with old London friends on the Sunday, which certainly sweetens the deal some what. At least it doesn’t seem like I’m using my personal time for work then.

Frankly I hate getting up early, and there is nothing better than being able to get up later and still make that 10am meeting, without worry about delays or scrapping for the last seat on a stupidly packed peak-time train.

Why you should never pay for online dating 101

match.com - Make Love Happen

I have said it many times but never really wrote about it in detail…Why you should NEVER pay for online dating

Check out BBC’s Adrian Goldberg’s show recently and the news item

Customers of one of Britain’s largest online dating companies have voiced concerns that they may have been lured into paying subscriptions by potential dates who did not exist. Men who signed up to a number of sites owned by Cupid plc complained to the BBC’s 5 live Investigates programme that flirty messages they received as free members rapidly tailed off when they became paid-up subscribers. Cupid plc said it did create staff profiles, but only for “the express purpose of monitoring the site for quality assurance and moderation purposes”.

It categorically denied the company sent communications in order to tempt free members to pay subscriptions.

The messages are generic in nature, only appear when your not a subscriber or membership runs out and don’t reply when your signed up and a member? Not only that, many people have experienced this on many dating sites including cupid.com or in my case speedater.com. I say one thing not putting myself in a difficult position… Ockam’s razor.

From online dating insider

But let’s get one thing straight, many dating sites have engaged in sketchy practices when it comes to growing their user databases. This is an industry-wide issue. Cupid LLC is just the latest to find themselves in the media’s crosshairs. Similar allegations have been made against Yahoo Personals, the Match fake profile lawsuit, Spark Networks and other sites over the years.

I’ve heard lots of stories over the years of how dating sites will do some pretty ridiculous things to achieve enough customer density to get people to stick around long enough to (re)monetize. Some choose to buy fake profiles during the launch process. I think most would agree that this is a terrible idea. Other use automated messaging of different sorts (email, IM, chat). This has been going on for a decade. The truth of the matter is that like any industry, there are always bad actors that will do anything to grow their businesses.

Its worth pointing out Cupid.com is Cupid.LLC which has nothing to do with OkCupid.com, which published many reasons why you should never pay for online dating a while back then removed it.

No matter if its fake profiles sending emails, fake users, fake whatever. The nature of the sending and receiving messages when a subscriber or not, works to keep you on the site and extract money…

Manchester’s got everything except a beach

Castlefield <3

I spent sometime in London over the last few weeks for connected studio and a number of work meetings. I got to see a bunch of people I had not seen for a long while and most asked me…

“So how is Manchester, you don’t regret moving?”

Or something along those lines…

My answer is always something like you should come up and stay sometime, its a great city. Almost 5 years and I’m loving it… The great thing is I’m not the only one spotting the fantastic opportunities available. Specially when it comes to the digital world.

The second factor is the sense that a genuine startup culture is being fostered here. The elements have always been in place for this to occur, particularly that Manchester has the largest student population in Europe with over 100,000 currently studying in the city’s five universities.

These include the University of Manchester, which is playing a really important role in the high-tech space. Meanwhile the University of Salford has recently opened a campus at MediaCityUK, designed to encourage creativity, innovation and collaboration between academics, students, professionals and industry, and develop talent for the creative, media and technology industries.

Between the BBC building a massive base here, TechhubManchester, the stupid amount of bandwidth being put into the city and other stories. Its worth mentioning some of the other things happening…

MadLabUK

Essentially a adult/hacker community space complete with different floors running a number of different community minded events. Its amazing and they have expanded already. The owners (4 of them!) hold it all together and even though they struggle most of the time, theres always something interesting on for the local community. I can’t explain how great Madlab is… Everything from Co-working, room hire to the random Art exhibitions and Hackman meetup. Madlab is also the first place to start dabbling with DIYBio which further demonstrates how great a place it is. Well worth a visiting always…

The Classroom

The Classroom is a welcome treat sitting between the likes of working out of a coffee shop and the likes of Techhub which is much more serious about there startup status. It is a co-working space but closer to the kind of thing I’ve only witnessed in San Francisco. Its still quite new but looks to be growing due to the demand.

Northology

The brain child of Nathan Rae (can be found regularly behind a camera on the Manchester scene), setup to highlight key people in the Manchester scene. I had a similar idea a while ago but it didn’t quite work out (smallworld). However Northology is now on its 9th podcast and doesn’t look like its stopping anytime soon. Who knows maybe it will expand to video one day?

FabLab

Manchester’s fabrication laboratory is next door to where I live. Its still doing a great business and I really do need to find something to build. Easily confused with MadLab but completely different, I need a project just so I can mess with the 3D printer, welders, laser cutters, etc.

…and the many coffee shops and bars in the northern quarter and cholton

There are too many coffee shops and bars in the northern quarter and cholton which are friendly to people who want to work out of them or just chillax on a Sunday afternoon. Unlike many places I’ve been to in other cities which will lock down there wifi, block power points and make you feel like a baby eater for sitting 10mins beyond the end of your allocated tea time. Some of the most notable including… North Tea Power, FYG Deli, Common, Soup Kitchen, Vivid Lounge, North Star cafe, Home Sweet Home, sugar junction, etc, etc…

Relationship fuss

32/365 Status Update

People who have been in a relationship of what ever kind for more that 5 years are lucky. Yes they are matched with someone significant but they don’t have to go through the fuss or even hell of announcing it on fb.

Recent research suggests that the decisions people make about whether and how to represent their love lives on Facebook can often be quite telling. For example, my colleagues and I found that people who post a “Single” relationship status on Facebook have more sexual partners between relationships than those who opt out of posting “Single” on their profile. We also found that people who disclose that they are “In a Relationship” on Facebook also report being more committed to that relationship. Even among married people, we found that those whose primary Facebook photos include their spouses are less likely to split up 6 months later

With previous girlfriends, it was carefully chosen when to change fb statuses. I usually change mine to prove I was no longer dating.

The act of publicly publishing your status (even subconsciously) has a massive profound effect… going by this study a positive effect?

I believe this also applies to publishing things like your new years resolutions. Which I have done for years.

Top 10 Good Tech Habits

don't feel blue


Lifehacker
has a list of 10 good tech habits to have… Luckily I seems to have most of them, however its good to share them because lots of my friends have fallen fowl of some of them.

  1. Search Google Like a Pro
    Absolutely! You got to know how to use search engines fully…
  2. Back Up Your Computer
    The amount of friends who don’t do this is terrible. I don’t backup everything but the essential stuff I have backed up on Spideroak. The less important stuff I have backed up on Dropbox.
  3. Use Secure Passwords
    If I got a pound for everytime I’ve shouted Keepass!
  4. Know What Maintenance Your Computer Needs (and Doesn’t Need)
    Of course building PC’s in the past and still doing bits here and there, I certainly feel like I know my stuff, although since I moved to Ubuntu I’ve kind of lost touch with my Windows background.
  5. Be Smart About Hoaxes, Scams, and Internet Myths
    Oh I’m across this, snopes and wikipedia is your friend. Generally if you think its all makes sense
  6. Stay Safe on Public Wi-Fi
    I’m aware of the risks and never do anything serious on a non-SSL connection. I’m aware of the sniffers and have been known to throw open wireshark every once in a while.
  7. Avoid Getting Malware (and Spreading It to Others)
    Running Ubuntu over Windows means the chances of Malware is less but I’m also very aware of the risks. I usually avoid passing stuff on by just deleting them but I’ve sometimes I report them. Specially banking phishing.
  8. Keep Your Desktop and Hard Drive Free of Clutter
    Check, all good…
  9. Know When You’re Paying Too Much for a Product
    Yes although I won’t go totally out of my way for a deal, as I put a price on my time and effort
  10. Regularly Audit Your Privacy Settings on Social Networks
    My general rule applies… If its private, it shouldn’t be online. No matter what privacy settings you have check the End user licence agreement! That will tell you everything you need to know…

Black mirror s2e1: Be right back

Black Mirror s2ep1

Black Mirror season 2 episode 1

Martha (Hayley Atwell) and Ash (Domhnall Gleeson) are a young couple who move to a remote cottage, where Ash’s parents used to live. Ash is a big user of social media, tapping away on his phone, just a bit too much. Martha doesn’t really mind, she loves him and they’re looking forward to their new life together. The day after the move, Ash is killed, returning the hire van. At the funeral, Sarah (Sinead Matthews), a friend of Martha’s, tells her about a new service that lets you stay in touch with the deceased. By using all his past online communications and social media profiles, a new ‘Ash’ can be created – disarmingly ‘real’ and a help to a grieving partner. Martha is disgusted by the concept and wants nothing to do with it. Martha decides to stay in the cottage, despite her sister, Naomi (Claire Keelen), being worried about her isolation. Then one morning Martha receives an email from ‘Ash’. Sarah has signed her up. Martha is furious and deletes the message. But then she discovers she is pregnant and in a confused and lonely state Martha decides to talk to ‘him’.

*Spoilers ahead, you were warned*

Excellent episode which involves a woman losing her partner. A friend sets up her with a special system which takes all the public data of that person and generates a avatar of the data. So all those public tweets, flickr pictures, etc. First it emulates the voice and then it starts to emulates other aspects. In the end the woman is lured into levelling up  to a physical avatar.

While it seems somewhat insane… Its not as far future as you may think.

When I first started watching it, I instantly thought about Weavrs

Weavrs are your alter egos crafted from the threads of the social web.

Imagine Weavrs + Google Now…! Yes be afraid, be very afraid… You think sleeping with your partner as weavr is bad, wait till you point it at someone eles’s weavr! Or worst pointing it at yourself!  Scary and freaky stuff!

Charlie Brooker did a preview showing of black mirror at the BFI last month, which I need to watch when I get a chance (can’t get it to play on my xbmc setup unforgettably). Thanks to tim dobson for reminding me of tomscott’s piece about this a while ago… well worth watching like most of his stuff

 

Living the life of Seinfeld

New York, USA

I’ve been re-watching the Seinfeld TV series and getting a whole new outlook on the series. In some regards seinfeld’s life is very similar to my own and I seem to share the geeky level of critical analysis of the mundane. Maybe because that’s what makes life much more interesting. The analysis of relationships and life isn’t just smart but ever-so perfect…

Anyway I came across important life lessons learned from watching seinfeld

Dating is brutal

An important life lesson from Jerry Seinfeld

The reason that dating can be so brutal is the scrutiny that you put each other through. Because whenever you think about this person in terms of the future, you have to magnify everything about them.

The guy will be thinking “I don’t think her eyebrows are even. Could I look at uneven eyebrows for the rest of my life?”

And of course the woman’s looking at the guy, thinking “What is he looking at? Do I want somebody looking at me like this for the rest of my life?”

Good stuff…