5 years ago, while I learned to speak again

Ward at Alpha Hospital

Its the June 2nd and its about the time I could barely talk (due to a trach) but my memory was less hazy and I can remember much more. My sister tried to create a communication board, so I could communicate without saying the word. It was pretty frustrating and too be fair i did tell her. I did feel bad about it, as she really trying to help. I remember writing, this is stupid and there has to be a better way… Luckily I didn’t need to wait long before I could talk again.

Ross and Carly came and saw me a few times and certainly helped with the healing process, by making me laugh and cough a lot. I think I remember Adrian seeing me at one point too, he gave me the printed information on Google IO 2010 and the much talked about Google TV.

This about the time when I started going a little stir crazy, as it was ICU, you were not allowed to plug anything into the wall.  My saving grace was my old kindle full with ebooks which I meant to read at some point. I also had enough of the woman next to me with her kicking action to get attention. I must have read about 10 or so books while I was in ICU, unfortunately lights out was 8pm and I didn’t have the paperwhite kindle at the time.

My parents did offer to bring my laptop but I originally said no (believe it or not!). They did bring my pacemaker which I had a hard time re-learning in the first hour but gave rise to a number of mixes later.

Not being able to get out of bed was a real pain, even when I could actually stand. The nurses wouldn’t let me go to the toilet alone and it wasn’t till I pretty much pleaded with a male night nurse to please let me use the normal toilet so I could have some privacy. I finally was happy again. Privacy is something while going to the loo is something I certainly like and the doctors did wonder if my body was operating correctly.

Hospital food is pretty bad but try having complan as your main supply of food, by this point I only had to survive a day or two on it before than it was via the drip in my nose. Food via a drip was weird and interesting especially when you are fully aware of whats actually happening.

The last thing I certainly do remember is the injections of  Anticoagulants better known as Warfarin. It was either have it in the arm or in the stomach. Don’t ask me why remember I hadn’t had hypontherapy yet, but I decided the stomach was best because I couldn’t move it and have it scratch and theres quite a bit of fatty tissue… It was painful but honestly it wasn’t as bad as in the arm. Having every day got me slightly use to it but any chance I could avoid it, I did. Unfortunately it would only work for a short while before they would hunt me down for another fix!

Mum and Dad kept writing blog posts on carringbridge thanks to Sarah and Sharon.


 

Ian had a very good day today!  He was able to stand for the nurses and was out of bed sitting in a chair for most of the day.  He was smiling a lot and laughing at jokes (which is helping to clear his chest).His breathing is continuing to improve and we hope the trach tube will be removed soon so he’ll be able to speak.

Hi everyone,Ian is progressing well.  He is breathing with very little help now.  They are thinking of transferring him out from ICU to a High Dependency Unit tomorrow.

Ian’s dad, sister and I have been back in Manchester with him since yesterday afternoon.The trach tube had to be resited and Ian is still having some ventilation through that just until his breathing improves.  They are reducing use of it and he is mostly breathing on his own.Ian’s sister has been reading him messages from the guestbook which are much appreciated.  However, at the moment we would still like visitors to be limited to family.  Ian is having ups and downs in his recovery, but on the whole is improving.  We want to make sure he rests and does not get frustrated with not being able to speak (this is temporary due to the trach tube).   He is communicating with us by blinking, nodding and occasionally writing, and he does understand everything that is going on.

Ian’s ventilator was removed again this morning.  To avoid having the ventilator back in, he has had a tracheotomy to help him breathe.  This is just a temporary measure until his breathing is stabilised.  The drain has been removed from his head, so now it is just the feeding tube in his nose.He indicated he was in pain due to having the tracheotomy, so he has had some medication to help with that.I have travelled to Bristol this evening, but will drive back to Manchester with Ian’s dad on Saturday morning.  Ian’s sister will also be back up to see him on Saturday.More cards arrived for Ian today and they are all being stuck up to the wall near his bed.  Thanks to everyone for all the get well messages.