My beautiful broken brain

I first heard about the documentary my beautiful broken brain via mindhacks. I then tracked it down and finally watched it. Lotje was 34 when she had the same kind of brain injury as myself. I ended up calling it #mybrushwithdeath.

Watching the documentary was unreal not only because there was so much I could relate directly to. The process of what she remembered and what she doesn’t really got me. I was in tears. There is absolutely no doubt I was incredibly lucky. The mix of reality and non-reality was frustrating to say the least, but I certainly didn’t have the big problem Lotje had with reading.

Some people will say why film it? Maybe the same people who asked why I would get on stage and do a TEDx talk about my experience? You only have to read the reviews to start to understand why, telling such a personal story is so important.

As a survivor of multiple strokes including a major hemorrhagic stroke in 1999 just 13 days after my 37th Birthday and a massive hemorrhagic stroke 2011 just before Christmas I can relate to the lady in this film, I went through and I am still going through a lot of what she had experienced from her stroke. I found this movie very good at explaining what we as stroke survivors are going through. I would highly recommend this movie to people who are interested stroke experiences and want to understand what we are going through because it is truly hard for us to explain to others what it is like to live life with our beautiful broken brains.

If I was to sum up the documantary, it would be the line from Lotje herself…

I’ve learned I’m strong, accepted my vurnability and focus on what matters…

Beautifully said…!

One BBC for everybody

https://twitter.com/scottygb/status/719875893716500480

 

Interesting tweet from Buzzfeed who were talking to Netflix’s CEO, while talking about the BBC and Top Gear.

Hastings: The BBC has been a pioneer. They have been the first to invest in technology like the iPlayer, which has done a great job. … [In the future] they’ll have to get rid of the iPlayer branding. It should just be the BBC.

What comes to my mind…?

In writing, you must kill your darlings.”

Well that, Chris’s post and the many conversations I have had over the last 5 years.

When 6 wasn’t enough, theres Sense 8

One gunshot, one death, one moment out of time that irrevocably links eight minds in disparate parts of the world, putting them in each other’s lives, each other’s secrets, and in terrible danger. Ordinary people suddenly reborn as “Sensates.”

Cloud Atlas was great but few people got it and watched it. The Wachowskis undetermined have put together a fascinating TV series for Netflix called Sense8.

Its almost like 6 connected peoples stories over 3hours wasn’t enough… So they went for 8 hyper-connected stories told over 12 hours.

By all counts the reviews are reasonable good and I’m enjoying it so far (on ep2).

Removing the mass from media

Netflix Doodle

I was listening to Framerate 152. And they mentioned a story written by Tim WuNetflix’s War on Mass Culture Binge-viewing was just the beginning. Netflix has a plan to rewire our entire culture.

So I had a read of the whole thing on my kindle via instapaper and it was intriguing.

It starts to answer the question about what happens everyone sees something different. One of the same questions I want to research with Perceptive Media. But I find myself thinking so what? This all sounds like normal life? So what? Hardly breaking new ground. Then I stop and remember… My world isn’t mainstream yet.

If modern American popular culture was built on a central pillar of mainstream entertainment flanked by smaller subcultures, what stands to replace it is a very different infrastructure, one comprising islands of fandom. With no standard daily cultural diet, we’ll tilt even more from a country united by shows like “I Love Lucy” or “Friends” toward one where people claim more personalized allegiances, such as to the particular bunch of viewers who are obsessed with “Game of Thrones” or who somehow find Ricky Gervais unfailingly hysterical, as opposed to painfully offensive.

The baby-boomer intellectuals who lament the erosion of shared values are right: Something will be lost in the transition. At the water cooler or wedding reception or cocktail party or kid’s soccer game, conversations that were once a venue for mutual experiences will become even more strained as chatter about last night’s overtime thriller or “Seinfeld” shenanigans is replaced by grasping for common ground. (“Have you heard of ‘The Defenders’? Yeah? What episode are you on?”) At a deeper level, a country already polarized by the echo chambers of ideologically driven journalism and social media will find itself with even less to agree on.

And there are those who laugh at me when I couldn’t remember the names of the 4 Beatles members or when I don’t know who the guy is playing the guitar on the closing for London Olympics 2012 ceremony. Well laugh all you like but theres going to be even more of us soon and you may be one them sooner than you imagine.

Now I know this might seem like a reason to be fearful for the future, I mean what about social collusion?

But it’s not all cause for dismay. Community lost can be community gained, and as mass culture weakens, it creates openings for the cohorts that can otherwise get crowded out. When you meet someone with the same particular passions and sensibility, the sense of connection can be profound. Smaller communities of fans, forged from shared perspectives, offer a more genuine sense of belonging than a national identity born of geographical happenstance.

Tim Wu then goes off on one about how this is the grounding of America, which is a logical argument. Netflix is simply understood where the future is heading and hitched its self to the future.

Purpose of blogging it was as a clear sign for those who laugh and make fun. One day its going to happen to you too…