Dyslexia the reality of daily life…

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I had drafted this blog for a while now and rewrote it a few times, then I read Chris’s blog post about Aspergers and decided it was time  to post it and be done thinking about it. I’m split the post up. This one about daily life. The other about love. Of course they both intersect.

I am a proud dyslexic, I came out (as such) along time ago and even have it in my blog subtitle. I write openly, hoping this will encourage the many other dyslexics and generally more neurodiverse people to come out (in lui of a better word).

From the start

I always knew I was different when I couldn’t spell short words, the lessons made little sense and I was easily distracted by other stuff. The words had a code/pattern which made no sense to me. By the time of primary school, it was clear something was different about me.I couldn’t follow peoples voice directions without translating it into a map or something visual.

Tying laces, ties or knots was a small nightmare mainly due to trying to remember which hand is left and which is right. Because of this I became slightly ambidextrous which would confuse things further

My primary school  did send me for dyslexia testing but I never finished it and so my dyslexia wasn’t officially diagnosed till over 10 years later at Ravensbourne College while trying to write my final year dissertation. This means I had no help, allowances or support all the way through secondary school and most of my college life.

Reading was also difficult for two reasons. The line lengths and the words. My mum would regularly take me and my sister to the local library and I managed by reading lots of non-fiction.

In that period of time, the seed was set in my mind and I read up about dyslexia and found coping mechanisms which centred around using computers to remember everything I couldn’t remember or spell. I bought a  2nd hand HP 200LX pocket computer with my saved up paper round money and used for lots of things. That was my first and I followed that with the Compaq Areo and Ipaqs.

Time management

I am notoriously bad with time. But thats only half the story. The reason why I’m so bad is because I tend to pack a lot in. To give you an example.

I live all of about 10mins walk from the Piccadilly Station (the major station for Manchester) Knowing its only 10mins away I tend to leave about 15mins before the time of the train leaving, I should really leave 20mins before to be sure. But what typically happens is knowing I can make it in 10-15mins, I end up doing stuff right up to the last minute I can leave. Maybe I can send off a few more emails, put bleach in the toilets, empty the recycling, etc, etc. With that I end up rushing to catch the train.

The way I see time is more elastic than others and this does seem to be dyslexic trait.

Time management is very difficult, if not impossible for many Dyslexics.   This is not due to them being lazy, thoughtless or uncaring. Dyslexics are right-brain dominant thinkers and live in the present. The past and future belong to the left-brainers.

A Dyslexic tends not to look at their life in any kind of a systematic way. They are often called “free spirits”, “flighty” , “unfocused” or “easily distracted” .

Welcome to the flow

I also tend to get fully immersed  in things and tend to forget about time as I enter the flow state. Luckily the flow state tends to be with other people as we bounce ideas around.  So its not directly responsible for missing the train most of the time but there are many times when chatting with somebody or some people, that time will just slow down and I wont even realise what time it actually is, meaning I’ll miss the last train or bus home.

Flow is a interesting state and there are certain people I feel the flow with more than others. The other night at a party I was pleasantly surprised to meet a women who I suspected was dyslexic but look through her book shelf confirmed it. We talked till 3am and to be honest could have talked the rest of the night easily. Insert joke about two dyslexics in a cafe never leaving.

I’m curious about everything and find creative people  quite attractive (this is where the sapiosexual stuff comes). I do find people concreted in reality a bit boring and tend to ignore them a little. I find these people too straight-laced and too conformist for my thoughts. I am not conformist… I’m black, I’m dyslexic and a self confessed geek. I have found my as a bit of spokesperson for the all of those things at times in my life. People come to me with stereotypes in mind and I break them in half. I won’t lie, I kind of enjoy the look on their face when I challenge their stereotypes.

Know thy self is what they say, and to be honest through my life experiences I do know who I am.

Working with dyslexia

I feel my mind is consistently on the go, bouncing from concept to concept. A few people in the organisation, have said “we pay you to think” and I frankly that plays to my strengths.  I am so grateful to be in a job which fits but I know so many dyslexics people who struggle with their job positions.

BBC R&D is very academic and frankly I haven’t chosen a  academic course for my life. Luckily the research world is in the middle of being radically changed by the internet (like most things) and this means conceptual thinking and collaboration is better treasured. If I had applied to join the department in the past, my cv/application would have been binned. But I was adsorbed into the department with my position as BBC Backstage.

I find work is full of people who are bound by the tangible and my unique selling point is the intangible, forward thinking and the essential need to collaborate. This why I partly find academic papers interesting (building on other ideas) and ever-so backwards (why are they so hard to write?)

I have little time for non-collaboration, I actually think every project I have ever done in BBC R&D, have been done with an external organisation of some kind. Information security love me, as I use tools which have collaboration baked in. They must have a fit every-time I try something new but I do take security seriously and struggle through end user licence agreements to understand whats really going on.

Literacy, language and memory

This is the stuff everybody thinks about when they think about dyslexia but there’s other elements which you may not think about. Consistent with most dyslexics my short term memory is bad. Trying to remember a phone number, ip address or email is a little nightmare. I changed my voicemail to reflect this issue.

Reading out-loud from a book or text is a nightmare I don’t have to visit too much since leaving school. Sometimes I forget the problem till I get up and start reading. For example I read a chapter from my book in a get together and the feelings of trying to do it came flooding back. Its the reading and speaking outloud, its not being in front of a small number of people or talking. I do that all the time and learned to ditch speaker notes and find my own style which just happens to be best practice for presentations.

Learning a different language is painful to say the least. I don’t know if its a dyslexic trait but I have such a hard time trying that it seems almost pointless. Thankfully the technology has my back, as I found out in Tokyo.

The future is intangible

I am seriously blessed to born in a age where whats in your head isn’t a sign of intelligence. However not everybody has got the message yet.  The nature of business has changed and being authentic and collaborative is key. Its also very clear a diverse workforce is better than a monolithic workforce.

I met a woman once who wrote a academically sound paper as a series of videos. She passed her PhD with the series of videos and her fight to get it accepted is something I’m not unaccustomed to.

I’ve had to fight for many things in my life and to be honest I will never go down without a fight. Being dyslexic is a card which I was dealt and there are advantage and disadvantages. Especially when it comes to my social and love life…

Could I imagine life not being dyslexic? Heck no!

(To be continued soon…)

My 5 years since party speech

Thanks to Josh for recorded my slightly drunken speech at my 5 years since BBQ/party.

I wish I’d thought about it as there would be some stuff about the secret of luck, self confidence, pushing boundaries and breaking social norms.

Thank you to everybody who turned up and made it up to Manchester. It was a blast and I’m so humbled how many people made it, even for a short while.

Thank you all again!!!!

Enviable things about online dating

ber-antem

Online site reviews wrote a piece titled, 4 truths about online dating you have to accept. It well worth reading and the basic list is …

  1. Eventually you will run into someone you know.
  2. You will be ghosted.
  3. Photos will lie.
  4. A 99% match could be meaningless.

I tend to agree but I would add…

  • You will be misunderstood and even blocked, for something which seems trivial
    It happens, people misread something or misunderstand the context and before you know it, the response is frosty or returned with a block. This also leads to ghosting…
  • You will be stood up
    Dates… where do I even start, I could do a enviable sublist about this alone. Its going to happen, you will be stood up and theres no point getting angry about it, its part of single dating life.
  • It will be attracted to somebody far away
    You edit your filters to only include people so far away and then somebody you think is local pops up in the search. Maybe they are visiting friends,  living locally for a short while or just about to leave the area. It will happen at some point, how you deal with it is the question.
  • You will come across women doing gang signs or men with their tops off in photos
    Self explanatory I think? Of course if you are a woman or a gay man, expect dick pics at some point too…

5 years ago, I was discharged from hospital

https://twitter.com/nevali/status/16415273538

Ah the end is just the beginning

GREAT NEWS!   Ian was discharged from the hospital this afternoon!  He is going to Bristol for a while to recouperate with his family and asks that people leave off contacting him directly for a bit as he’s got a month’s worth of email/messages to get through already and his phone is playing up at the moment.  He hopes to be back to his usual online presence soon, but for now just wants to relax and enjoy being ‘on the outside’.  As always, thanks for all your messages and kind words, and you are welcome to continue leaving messages in the guestbook here.

Ian and his mum have made a formal complaint to the hospital today, and Ian wrote the following about his experience last night around 10pm:

Yes 5 years ago I was discharged from Salford Hope hospital. It was quite a ordeal the last part of my recover in the hospital. I would say this is where things went wrong, as you can read in my complaint.

The first thing I did when I left?

My mortgage adviser (Billie) came to my flat with the papers to sign. She was amazing and honestly without her persistence, I most likely would have lost my great apartment at Islington Wharf.

Then I slept and disappeared down to my parents place for a week!

Of course my thank you  and thank you 2 posts capture my state/thoughts of amazement living through something most don’t. No need to do a bad version of timehop anymore.

I’ll be celebrating with friends and family this weekend… Thank you everybody! These two tweets really got me…

Oh and I had a totally surprise to see my my email I sent (I forgot many things around that time) to the UK Wired after seeing their top 100 UK people earlier in the year.

https://twitter.com/ThinkingDigital/status/15913986406

Japanese culture conflicted

Ariana Miyamoto Eletta Miss Giappone Ma Scoppia La Polemica Perchè Di Colore "Non è pura

From the BBC

With a Japanese mother and African American father, Ariana Miyamoto has become the first bi-racial woman to be crowned Miss Japan.

The question of whether a person of mixed race should be eligible to win the competition has since provoked a heated argument on social media,

Oh I can so believe the kind of comments Ariana is getting. Japanese culture is so future focused in some things and ever so in the past for others. I understand the history of Japan, but I can’t help but say its 2015!

I honestly can’t imagine how bad the Japanese view on mix race relationships…  Hopefully this will start to sway things.

5 years ago, The best Hello world message

While on the mend, I finally wrote my first blog to the world via dictation to my family. I remember saying the words with tears in my eyes. Of course it had to be Hello World, as there was nothing more fitting. The joke about hospital food was my injection of humour, although I have to say the hospital kitchen/restaurant really looked after me while I was there. I was given quite plain food but they kept checking about my allergies all the time. Actually far more than the doctors (as you will see in the next week)

It was great being able to talk again although I still have the trach scar, which will never go away now. I couldn’t explain how much the cards and comments meant to me and my family. I was kind of overwhelmed to know I had touched so many peoples lives and they in turned felt it was worth reaching back.

I was looking forward to moving out of ICU because this about the time when I started really getting better really fast. It was like my body was just repairing its self at a rate the hospital had never seen before. Amazing when you consider the life expectancy of people who have bleed on the brain

If subarachnoid hemorrhage from aneurysm, about 50% die within the first few days in hospital. If intracranial bleed, with/without stroke, the death rate within year one approaches 60%. Figures have remained constant for years.

I am one of the very few lucky ones and believe me don’t I know it, and there is no way I will forget it


 

[Message below was dictated by Ian this evening, no internet connection in hospital]

Ian says:

‘Hello world!  Thank you very much for taking the time to find out how I am doing.  I am doing okay.  I am still in hospital, but making a positive recovery.  Thank you to everybody who has written to me and my family and thanks for writing such amazing things.

The trach tube is out and I can speak again.  The feeding tube is also out.  I had solid food for the first time yesterday–it was horrible!  Of course it was hospital food.

Thank you for all the messages to my family.  I’m on the way to recovery.’

[Ian is due to be moved out of ICU and on to the ward as soon as a bed becomes available.]


Ian is continuing to do well and they are hoping to move him out of ICU and on to the ward soon (possibly this weekend).  He was a bit tired today and slept more, but he did spend most of yesterday out of bed and sitting up.

Ian’s flatmate Tim brought his laptop in for him, but there is not a wireless connection to use so Ian will not be online yet.

Unfortunately Ian missed some visitors today because he was sleeping.  For anyone else who is visiting, please be aware you might not get to see him if he is tired, but we do appreciate you coming to visit!

They hope to put some sort of valve into the trach tube that will make it possible for Ian to speak, but I am not sure when they’ll do this.


At the moment Ian is still in the ICU.  They had thought they were going to move him to the H.D. unit, but there wasn’t a bed available, so for now the plan is for him to stay in ICU until he is ready to move to the ward.

Ian is ready to have visitors now, but in ICU this is limited to two people at a time.  If you want to come visit, please leave a message in the guestbook letting us know what day and time you plan to come (and please leave a contact number in case we need to reach you).  Visiting hours are from 1pm-9pm daily.  They are quite strict about what can be brought into the ICU due to infection control.

Ian still cannot talk due to the trach tube so it can be difficult to communicate with him.  He is finding it frustrating, but appreciates visitors coming as he is getting bored.

5 years ago, while I learned to speak again

Ward at Alpha Hospital

Its the June 2nd and its about the time I could barely talk (due to a trach) but my memory was less hazy and I can remember much more. My sister tried to create a communication board, so I could communicate without saying the word. It was pretty frustrating and too be fair i did tell her. I did feel bad about it, as she really trying to help. I remember writing, this is stupid and there has to be a better way… Luckily I didn’t need to wait long before I could talk again.

Ross and Carly came and saw me a few times and certainly helped with the healing process, by making me laugh and cough a lot. I think I remember Adrian seeing me at one point too, he gave me the printed information on Google IO 2010 and the much talked about Google TV.

This about the time when I started going a little stir crazy, as it was ICU, you were not allowed to plug anything into the wall.  My saving grace was my old kindle full with ebooks which I meant to read at some point. I also had enough of the woman next to me with her kicking action to get attention. I must have read about 10 or so books while I was in ICU, unfortunately lights out was 8pm and I didn’t have the paperwhite kindle at the time.

My parents did offer to bring my laptop but I originally said no (believe it or not!). They did bring my pacemaker which I had a hard time re-learning in the first hour but gave rise to a number of mixes later.

Not being able to get out of bed was a real pain, even when I could actually stand. The nurses wouldn’t let me go to the toilet alone and it wasn’t till I pretty much pleaded with a male night nurse to please let me use the normal toilet so I could have some privacy. I finally was happy again. Privacy is something while going to the loo is something I certainly like and the doctors did wonder if my body was operating correctly.

Hospital food is pretty bad but try having complan as your main supply of food, by this point I only had to survive a day or two on it before than it was via the drip in my nose. Food via a drip was weird and interesting especially when you are fully aware of whats actually happening.

The last thing I certainly do remember is the injections of  Anticoagulants better known as Warfarin. It was either have it in the arm or in the stomach. Don’t ask me why remember I hadn’t had hypontherapy yet, but I decided the stomach was best because I couldn’t move it and have it scratch and theres quite a bit of fatty tissue… It was painful but honestly it wasn’t as bad as in the arm. Having every day got me slightly use to it but any chance I could avoid it, I did. Unfortunately it would only work for a short while before they would hunt me down for another fix!

Mum and Dad kept writing blog posts on carringbridge thanks to Sarah and Sharon.


 

Ian had a very good day today!  He was able to stand for the nurses and was out of bed sitting in a chair for most of the day.  He was smiling a lot and laughing at jokes (which is helping to clear his chest).His breathing is continuing to improve and we hope the trach tube will be removed soon so he’ll be able to speak.

Hi everyone,Ian is progressing well.  He is breathing with very little help now.  They are thinking of transferring him out from ICU to a High Dependency Unit tomorrow.

Ian’s dad, sister and I have been back in Manchester with him since yesterday afternoon.The trach tube had to be resited and Ian is still having some ventilation through that just until his breathing improves.  They are reducing use of it and he is mostly breathing on his own.Ian’s sister has been reading him messages from the guestbook which are much appreciated.  However, at the moment we would still like visitors to be limited to family.  Ian is having ups and downs in his recovery, but on the whole is improving.  We want to make sure he rests and does not get frustrated with not being able to speak (this is temporary due to the trach tube).   He is communicating with us by blinking, nodding and occasionally writing, and he does understand everything that is going on.

Ian’s ventilator was removed again this morning.  To avoid having the ventilator back in, he has had a tracheotomy to help him breathe.  This is just a temporary measure until his breathing is stabilised.  The drain has been removed from his head, so now it is just the feeding tube in his nose.He indicated he was in pain due to having the tracheotomy, so he has had some medication to help with that.I have travelled to Bristol this evening, but will drive back to Manchester with Ian’s dad on Saturday morning.  Ian’s sister will also be back up to see him on Saturday.More cards arrived for Ian today and they are all being stuck up to the wall near his bed.  Thanks to everyone for all the get well messages.

5 years ago… Google IO 2010-15

5 years ago I woke up in hospital wondering what had happened, as it was explained to me. I asked a few questions. by the medium of writing on paper as I had a tracheotomy.

Ian wrote on a piece of paper asking for an article about Google, and one had been sent to him so he got to read it (thanks to the sender!).

What did Google announce at Google IO? If you remember I wrote about this and they announced (pretty doomed?) Google TV.

5 years later, I got to spend the time with my parents in Bristol. Yes I subjected them to Google IO 2015 but not live, so we could jump around a bit. I used the Chromecast I bought them 2 years ago. Quite funny to see my parents on google connected devices, very different from 5 years ago.

I have many thought about Google IO 2015 but those will save for those for another day.

5 years ago… my BBC colleagues wrote

@jas's picture of Herbkim

In my last post I wanted to include this picture of Herb Kim talking about me at Thinking Digital 2010. Still not heard what he actually said (could have been slagging me off or something *joke*) but I’m thankful for what he did do, as I was due to close down BBC Backstage on stage.

It of course never happened till much later of course.

Looking at the work/BBC angle was quite interesting. I have always said my work, personal and play lives are intermixed, and I like/prefer it that way. What happened while I was gaining consciousness says it all…

I saw this blog a long while later after I came out of hospital. I hadn’t realised the open and close battle (best word I can think of) which was kind of happening.

My parents once they received the call from Adrian came straight up to be with me. But my dad kept returning to Bristol for a house move was being finalised. So my mum reached out to Sarah (ex-wife) who recently moved near Manchester. She helped setup the carringbridge site after using it with her brother when he had fallen off something in 2009. Sarah was so supportive and contacted all of my old friends she still had emails for to tell them what had happened.

While this was happening Adrian, Tim and others were trying to keep things quiet by only telling people that needed to know. To be fair I would have done the same and they had no idea about Sarah and my mum spreading the word. The hodge also setup a form to collect responses from friends which was lovely and I thank him for doing so…

but this was trumped by the Carringbridge site Sarah and my parents setup.

I gather looking at the Twitter responses, there was a lot of wonder and doubt about what had happened. With information circulating from my mum and Sarah. I guess it became clear that the BBC needed to say something more official than tweets. I gather this isn’t normal but hey nothing about me and what happened is business as usual.

Adrian/Ant wrote…

This is just to let you know that unfortunately Ian Forrester, Senior Development Producer of BBC Backstage was taken ill last week and is now recuperating in Hope Hospital in Salford.

At the moment he is in a serious but stable condition and is being well cared for by the staff at Hope and his family.

For those who want to pass on their messages the Message for Ian Google form is here.

[Edit 04/06/10] Now that Ian’s family have set up the Caring Bridge site we’re recommending that people wanting to drop him a line use that channel instead.

Flowers aren’t allowed in ICU, but cards are, and can be sent to:

Ian Forrester
c/o Intensive Care Unit
Salford Royal NHS Foundation Trust
Stott Avenue
Salford
M6 8HD

We will keep you updated when we hear anything more but until then we hope that you can have Ian in your thoughts and let his other close friends know.

Dr Adrian Woolard

[In Ian’s hopefully short absence I’ll be looking after this blog- Ant Miller]

5 years ago, while I was lying in a bed

view from my bed

Its amazing to read back through the caringbridge entries my parents made (with Sarahs help). I had planned to post or tweet them at the time but I thought better of it, plus I have no idea what happened in the first 2 weeks (my last blog post doesn’t even close to whats about to happen). So here’s what happened in week 3, while I was in hospital in the early days.


Good news today!  The doctors do not think there will be further surgery because the angiogram was ‘clear’.  We think this means the bleeding has stopped.  They are planning to try to wake Ian up tomorrow.

Lots of messages and cards are coming in and we appreciate them all.  At the moment, visiting is limited to close friends and family.  We will let everyone know when he is able to receive more visitors.


I spent most of the afternoon and evening with Ian today.  They have taken him off the medication that was keeping him asleep and his condition is fair.  He’s opened his eyes and is able to communicate with me by nodding.  He is still on the ventilator but he is starting to breathe naturally.  They want to keep the ventilator in for the moment in case he isn’t responding properly.

He had tears in his eyes while I was reading all the get well messages to him.  So far he will only open his eyes when I ask him to, but he will not do it for the nurses.

At the moment it is still just family allowed to visit as Ian gets very tired quickly.  His dad and sister will be back with him tomorrow, and we hope to see some more improvement.


Ian’s dad, his sister and I have been to see Ian today.

Ian is off the ventilator and sedation drugs.  He is breathing on his own with oxygen.  He is still drowsy, but recognises everyone and is able to respond to instructions and understand us.  He is opening his eyes a lot wider and for longer today.

His throat is probably very sore from the ventilator, so it is a bit hard to understand him.  He can speak at a whisper, but we have told him to rest his voice for the moment.

Ian wanted to know what happened as he cannot remember falling ill; his sister has explained it to him.  He then wanted to know what the doctors said so I’ve told him about having the bleed on his brain.  He was listening and nodding to say he understood.

He is quite tired, but we are hopeful he is on the mend.


Yesterday Ian had to go back on the ventilator as there were concerns about his breathing.  I did tell the doctors his breathing is a bit laboured normally and they should take that into account.  They have also been sedating him again just to make sure he can relax and rest.  Because it is very difficult to get the ventilator in, they want to leave it in until they are certain Ian is ready to breathe on his own.

I still feel very confident that Ian is going to make a full recovery.  Today he smiled and squeezed my hand, and he laughed when we told him a joke.  He knows where he is and recognises his family.

He is still quite tired and drowsy, but I am reading him your get well messages when he is awake enough to listen.  Alvin and I had no idea how well known Ian is until we saw the messages coming from all over the world.

I am staying at Ian’s flat in Manchester and am pleased that I have figured out how to turn on his television!


Ian is making good progress today.  He was asleep for about an hour after I arrived, but then woke up and stayed awake and responsive for all the time I was there.

I held up some of his cards and messages for him to read.  Ian wrote on a piece of paper asking for an article about Google, and one had been sent to him so he got to read it (thanks to the sender!).

The doctors are hoping to to take him off the ventilator again tomorrow and see how his breathing is doing.

I was told a conference in Boston recorded a get well video for Ian.  At the moment, devices to play it for him are not allowed in ICU, but I will tell him about it and know he will get to see it eventually.