On returning to facebook…

Twitter makes me like people I’ve never met and Facebook makes me hate people I know in real life
Twitter makes me like people I’ve never met and Facebook makes me hate people I know in real life – agreed!

Interesting to see my friend Oli returning to Facebook after his decision to erase himself from it. It almost sounds like he’s returning home?

Nearly 4 months later, I’m returning, in fact there’s a good chance you’re seeing this on Facebook. This is however not without careful thought.

Oli then outlines some good points including…

The feelings of being disconnected and isolated, are well founded, but its also very easy to get sucked into the timeline and up yourself. Its something I have avoided as I can just imagine how much time gets lost there. I wonder if the  Timeline is the new and even more destructive farmville?

As I said previously I removed Facebook from my mobile devices and only look at it every 2-3 days mainly for booking my place on Volleyball sessions (Yes so popular volleyabll is in Manchester that you can’t just turn up on the door). I also found the ical option useful for keeping me a breast of event/calendar invites. They show up on my calendar but then I have to go to Facebook to actually accept, decline or find out more.

I prefer to subvert Facebook than ignore it, which means I still don’t post photos or write new stuff there. Its certainly a dumping ground for things available else where online.

Oli isn’t wrong but there is a pragmatic way which involves having a account and using it in a smart way understanding the issues which come with it. Something like a drunk uncle at a family party, the one which nobody wants to be left alone with after dark I joke of course but if you ask me if facebook is equivalent to a creepy uncle? I would say that’s only the start of the comparisons. In years to come, (15 years I say) it will seem much like a crazy period of time where we didn’t think about what we trust so much?

It wasn’t so surprising to see him back… Although I still (currently) prefer Twitter (even with all the nonsense they have done to support their revenue growth).

Being ENTP, dyslexic and there effect on relationships?

The Breath of God

I have drafted this blog for a while now and rewrote it a few times, then I read Chris’s blog post about Aspergers and decided it was time  to post it and be done thinking about it. I’m going to split the big post up. This one about relationships. The other about what its like being dyslexic and daily life. Of course they both intersect.

Now to be absolutely clear I’m talking for myself, but doing some very basic research online, its clear there is a trend. But, outside peoples first hand written accounts I can find little academic research.

I’m also going to refer to the myers briggs personality indicator later, feel free to rant and rave about how much bollox it is but I see it as a useful frame for reference purpose.

I’ve had a lot on my mind. Some of it was slightly upsetting, some best ignored and some best forgotten. But out of it came the thoughts I’ve been thinking for a long while.

  1. Do I actually want to meet somebody and settle down (or similar)?
  2. Being incredibly social, confident and regularly meeting new people how am I still single? (said without sounding like a douche bag)

The answer is yes I do want to meet somebody and maybe settle down (if thats how you want to put it) but being very social seems to get in the way of  love, some say to me. This is why I kind of went with the sapiosexual term (although I do appreciate, its not really a sexuality – thanks Tom Morris for the long blog hammering this home – I hear you).

Ian Forrester

About me (cheers Adewale for the picture)

I am quite extroverted, charismatic and a slightly charming ENTP. Looking at the traits which seem to be associated with dyslexics who have made it into places and positions which best suit them, this seems quite common. Its hard not to fall for the charms of someone with such traits. Most people only know, dyslexia traits in relation to learning, education and perceived notions of intelligence. There seems to be far less about other aspects of being dyslexic.

My hypothesis is there is a strong link between dyselxia and the personality types ENTP and INTP.

Follow the path of the unsafe, independent thinker. Expose your ideas to the dangers of controversy. Speak your mind and fear less the label of ‘crack-pot’ than the stigma of conformity. And on issues that seem important to you, stand up and be counted at any cost.

– Thomas J. Watson

Being extroverted, I enjoy the company of people a lot. The feeling of connectedness is comforting and enjoyable. I feel enriched by people. I can spend time alone but I feel bored after a while, maybe this is why I spend so much time in the bar/cafe downstairs and work best out of a busy environment like a coffee shop.

This is why my holiday in Tokyo was always going to be amazing for me. Even with its culture shock, I loved it. Somebody at work went to Tokyo at the same time as me and described it as one of the most loneliness places they have ever been. I was slightly shocked by this although I can understand where they were coming from.

People have commented that maybe the reason why I don’t need/can afford to be so picky, is because I  fill my time with the company of other friends. For some reason the percentage of female friends is higher than most men I know too. Don’t ask me why, but I have thoughts (for another blog post maybe)

So what about intimacy? Of course I would argue the time shared with certain friends can be pretty intimate, but if you mean sex… well thats a different kettle of fish and been redacted.

The fear of missing out

My life is a blur of work/personal/social, I couldn’t really imagine it any other way. I’m unsure if this is a dyslexic trait or a personality type as I haven’t seen this in a lot of other dyslexics. But its clear I tend to get bored if I’m not working on one of many personal/work projects. There is a slight fear of missing out but really its about as Jason Silva comments, about choice collapsing possibilities. I love and work in abstracts and linked possibilities. This practically makes me slow to pick from a menu (a very basic example) as collapsing the possibilities is a pain.

I fill my life with stuff to do because I really do enjoy it. I know for others it sounds like a nightmare. But I admit there has been times when its impossible to get a date in the calendar because I’m so busy.  I did try and leave spare time in my calendar as a new years resolution one year, but failed.  It wouldn’t be totally wrong to say I might too busy for love but not in the crappy way that article says. Heaven knows what would happen when/if I have children. Although I’m sure things will just change as they do.

Diabolo

Defining my own reality

ENTPs enjoy the mental exercise found in questioning the prevailing mode of thought, making them irreplaceable in reworking existing systems or shaking things up and pushing them in clever new directions.

I define my own reality, this can be seen as quite arrogant but frankly I have tried to live by what society and others suggest. I  recognise patterns which work for a while then breakdown. This isn’t to say I’m not willing, can not compromise or change. But there are some things which I know can’t be easily changed from previous experience.

Sometimes life isn’t about chasing love. It’s about creating it. And that’s what I’ve got to do now. I’ve got to create my own love so that future love has a fighting chance. I owe myself that much…

I certainly think this is true hence why I persist. I’m carving out something unique by spreading some love around by sharing my reality with friends and family, you only have to look at the amount of parties, BBQs, etc I do and have done. My hope is I’ll share it with someone who understands and loves the way I view the  world.

one thing ENTPs are good at, it’s coming up with a never-ending stream of innovations and ideas to keep things moving forward, and this is evident in their romantic relationships as well. For people with the ENTP personality type growth is key, and even before they’ve found a dating partner, they imagine all the ways that they can experience new things together, to grow in tandem. This can be an overwhelming process if their partner doesn’t match up, but when ENTPs find someone who shares their love of intellectual exploration, watch out

Limits of growth

Continuous growth comes at a cost

Continuous growth is something in economics I’m unsure about because of the sustainability of it. How ironic I worry about the sustainability in economics when the endless learning and intellectual exploration is a goal I pursue.

ENTPs see either growth or stagnation and don’t buy into the idea of a happy status quo, making them demanding as much as they are exciting. Some may tire in the face of this constant improvement – while ENTPs’ vigor can be attractive, it can also wear down even the most patient partners.

I’m consistently doing, trying, achieving new things/projects and to be honest I can see how tiring it is for some of my past partners. Heck its even tiring for me sometimes (rarely) It takes a lot make me super excited but the idea of improvement, sharing and exploring ideas certainly excites me no end (literary! )

…ENTP personalities may even ignore their partners’ feelings altogether, instead immersing themselves entirely in some distant idea or opportunity, inaccessible.

I am known to be distant or too busy doing something else, not only physically but mentally. I’m unsure why but I just seem to disappear elsewhere. Like when I was young, I would daydream about linked concepts and opportunities. Its weird because I seek the flow state but its like I’m bored or something? This obviously seen as a reflection on the partner and therefore you can only imagine the chaos this causes in relationships.

Of course I battle with myself to try and turn things around but honestly I have tried so hard over time and its just me, I accept it as a weakness and my greatest strength. We all have our issues, deep down that nobody wants to talk about. I try to be up front and honest about stuff but so far its not really worked out.

Rumi - What you seek is seeking you

What I’m seeking?

Knowing myself, I tend to look for something quite different in potential partners. Its certainly not about the looks, with a understanding of how I think, its hardly surprising I’m about what goes on in the mind. Lots of my friends laugh as I tend to pick personality over beauty. Not to say beauty doesn’t factor into things but its not my primary focus. Confidence, independence and geeky passion for growth and improvement are super sexy to me.

I need lots of space and freedom to explore, I would hate for my partner to be waiting for me to get home, especially when I get into something. The ideal partner would be out doing her own thing too, when we come together it would be special. This isn’t what everybody sees as a healthy relationship but looking around, I know it can work. I have friends in serious committed relationships who spend much time apart for various reasons.

There is a theory that the ideal person for a ENTP would be a INTJ

The ENTP and INFJ were meant to be together because the ENTP shares his intuition all the time. Most people do not like to hear intuitions and theory they don’t understand in conversations. The INFJ has the same skill at idea generation that the ENTP has. When the ENTP talks, the INFJ can listen and understand his very advanced intuitions. INFJ’s and ENTP’s both like systems. The INFJ finds people systems more interesting; the ENTP systems of things. When they communicate something special happens. The ENTP talks and the INFJ comprehends and listens automatically. That means the ENTP feels listened to and completely understood.

I have no idea if this is really helpful as its unlikely that I would ask women for their personality type. On top of that, as we already know, love is far more complex and unquantifiable.

Flowing memories

So why am I sharing this all?

I don’t know, I guess there is a feeling that being open and honest may explain some of the relationship breakdowns or why I’ve been dating quite a bit. I of course hope it will make it easier for others to come to terms with there own quirks and intricacies.

It certainly feels like the longer I wait the easier it is to be honest about this stuff. Although I’ve already said maybe too much. However its worth noting this post was about twice the size with many more spelling and grammatical mistakes.

Its hard collapsing all those possibilities, taking opportunities to flow with people and balance them with traditional notions of relationships. I say traditional because I’m very happy to see things changing for the better, changes which reflect the diversity of the people within it. Maybe one day I won’t be that unusual, till then I guess I live up to my personality type and hope some lovely independent, geeky, feminist women read this and think oh yes I the sound of him (I joke).

Ian and Tara

But seriously, some of this sounds quite emotional? I’m really fine with everything, I edited out a lot. This is more an acknowledgement of the tricky reality I will always face when it comes to having a long meaningful relationship.

To Alton Towers or not to Alton Towers

https://twitter.com/cubicgarden/status/581508394433048577

I have owned a yearly pass for Alton Towers and Thorpe Park theme parks in the UK for a few years now. Its been well used over the last few years. The last time I went was in late March before going to Tokyo.

Soon after I got back, the smiler crashed and everybody and their mum pointed me at the news. Its pretty shocking and it does make you think but to be fair Rollercoasters are not meant to crash in this kind of way.

I did pay for another years pass before this all happened but haven’t picked it up yet (it becomes active once you go to a theme park and use it). I’m not quite sure how I feel about picking up my yearly pass especially since the smiler is still closed and looks to never be back…?

The years pass doesn’t start till I pick it up but I wonder how Alton Towers will react if I decided I wanted my money back?

In reflection, the Japanese way of triple checking everything before letting the train leave the station, is quite sobering to read and think  about. My reaction in light of the smiler accident is slightly changed.

  • Will I be back at Alton Towers at some point? Yes
  • Will I ride the smiler again? Yes but it looks unlikely it will survive
  • Am I upset with the way Alton Towers have handled this whole thing? Yes

Dyslexia the reality of daily life…

IMG_1425

I had drafted this blog for a while now and rewrote it a few times, then I read Chris’s blog post about Aspergers and decided it was time  to post it and be done thinking about it. I’m split the post up. This one about daily life. The other about love. Of course they both intersect.

I am a proud dyslexic, I came out (as such) along time ago and even have it in my blog subtitle. I write openly, hoping this will encourage the many other dyslexics and generally more neurodiverse people to come out (in lui of a better word).

From the start

I always knew I was different when I couldn’t spell short words, the lessons made little sense and I was easily distracted by other stuff. The words had a code/pattern which made no sense to me. By the time of primary school, it was clear something was different about me.I couldn’t follow peoples voice directions without translating it into a map or something visual.

Tying laces, ties or knots was a small nightmare mainly due to trying to remember which hand is left and which is right. Because of this I became slightly ambidextrous which would confuse things further

My primary school  did send me for dyslexia testing but I never finished it and so my dyslexia wasn’t officially diagnosed till over 10 years later at Ravensbourne College while trying to write my final year dissertation. This means I had no help, allowances or support all the way through secondary school and most of my college life.

Reading was also difficult for two reasons. The line lengths and the words. My mum would regularly take me and my sister to the local library and I managed by reading lots of non-fiction.

In that period of time, the seed was set in my mind and I read up about dyslexia and found coping mechanisms which centred around using computers to remember everything I couldn’t remember or spell. I bought a  2nd hand HP 200LX pocket computer with my saved up paper round money and used for lots of things. That was my first and I followed that with the Compaq Areo and Ipaqs.

Time management

I am notoriously bad with time. But thats only half the story. The reason why I’m so bad is because I tend to pack a lot in. To give you an example.

I live all of about 10mins walk from the Piccadilly Station (the major station for Manchester) Knowing its only 10mins away I tend to leave about 15mins before the time of the train leaving, I should really leave 20mins before to be sure. But what typically happens is knowing I can make it in 10-15mins, I end up doing stuff right up to the last minute I can leave. Maybe I can send off a few more emails, put bleach in the toilets, empty the recycling, etc, etc. With that I end up rushing to catch the train.

The way I see time is more elastic than others and this does seem to be dyslexic trait.

Time management is very difficult, if not impossible for many Dyslexics.   This is not due to them being lazy, thoughtless or uncaring. Dyslexics are right-brain dominant thinkers and live in the present. The past and future belong to the left-brainers.

A Dyslexic tends not to look at their life in any kind of a systematic way. They are often called “free spirits”, “flighty” , “unfocused” or “easily distracted” .

Welcome to the flow

I also tend to get fully immersed  in things and tend to forget about time as I enter the flow state. Luckily the flow state tends to be with other people as we bounce ideas around.  So its not directly responsible for missing the train most of the time but there are many times when chatting with somebody or some people, that time will just slow down and I wont even realise what time it actually is, meaning I’ll miss the last train or bus home.

Flow is a interesting state and there are certain people I feel the flow with more than others. The other night at a party I was pleasantly surprised to meet a women who I suspected was dyslexic but look through her book shelf confirmed it. We talked till 3am and to be honest could have talked the rest of the night easily. Insert joke about two dyslexics in a cafe never leaving.

I’m curious about everything and find creative people  quite attractive (this is where the sapiosexual stuff comes). I do find people concreted in reality a bit boring and tend to ignore them a little. I find these people too straight-laced and too conformist for my thoughts. I am not conformist… I’m black, I’m dyslexic and a self confessed geek. I have found my as a bit of spokesperson for the all of those things at times in my life. People come to me with stereotypes in mind and I break them in half. I won’t lie, I kind of enjoy the look on their face when I challenge their stereotypes.

Know thy self is what they say, and to be honest through my life experiences I do know who I am.

Working with dyslexia

I feel my mind is consistently on the go, bouncing from concept to concept. A few people in the organisation, have said “we pay you to think” and I frankly that plays to my strengths.  I am so grateful to be in a job which fits but I know so many dyslexics people who struggle with their job positions.

BBC R&D is very academic and frankly I haven’t chosen a  academic course for my life. Luckily the research world is in the middle of being radically changed by the internet (like most things) and this means conceptual thinking and collaboration is better treasured. If I had applied to join the department in the past, my cv/application would have been binned. But I was adsorbed into the department with my position as BBC Backstage.

I find work is full of people who are bound by the tangible and my unique selling point is the intangible, forward thinking and the essential need to collaborate. This why I partly find academic papers interesting (building on other ideas) and ever-so backwards (why are they so hard to write?)

I have little time for non-collaboration, I actually think every project I have ever done in BBC R&D, have been done with an external organisation of some kind. Information security love me, as I use tools which have collaboration baked in. They must have a fit every-time I try something new but I do take security seriously and struggle through end user licence agreements to understand whats really going on.

Literacy, language and memory

This is the stuff everybody thinks about when they think about dyslexia but there’s other elements which you may not think about. Consistent with most dyslexics my short term memory is bad. Trying to remember a phone number, ip address or email is a little nightmare. I changed my voicemail to reflect this issue.

Reading out-loud from a book or text is a nightmare I don’t have to visit too much since leaving school. Sometimes I forget the problem till I get up and start reading. For example I read a chapter from my book in a get together and the feelings of trying to do it came flooding back. Its the reading and speaking outloud, its not being in front of a small number of people or talking. I do that all the time and learned to ditch speaker notes and find my own style which just happens to be best practice for presentations.

Learning a different language is painful to say the least. I don’t know if its a dyslexic trait but I have such a hard time trying that it seems almost pointless. Thankfully the technology has my back, as I found out in Tokyo.

The future is intangible

I am seriously blessed to born in a age where whats in your head isn’t a sign of intelligence. However not everybody has got the message yet.  The nature of business has changed and being authentic and collaborative is key. Its also very clear a diverse workforce is better than a monolithic workforce.

I met a woman once who wrote a academically sound paper as a series of videos. She passed her PhD with the series of videos and her fight to get it accepted is something I’m not unaccustomed to.

I’ve had to fight for many things in my life and to be honest I will never go down without a fight. Being dyslexic is a card which I was dealt and there are advantage and disadvantages. Especially when it comes to my social and love life…

Could I imagine life not being dyslexic? Heck no!

(To be continued soon…)

My 5 years since party speech

Thanks to Josh for recorded my slightly drunken speech at my 5 years since BBQ/party.

I wish I’d thought about it as there would be some stuff about the secret of luck, self confidence, pushing boundaries and breaking social norms.

Thank you to everybody who turned up and made it up to Manchester. It was a blast and I’m so humbled how many people made it, even for a short while.

Thank you all again!!!!

Enviable things about online dating

ber-antem

Online site reviews wrote a piece titled, 4 truths about online dating you have to accept. It well worth reading and the basic list is …

  1. Eventually you will run into someone you know.
  2. You will be ghosted.
  3. Photos will lie.
  4. A 99% match could be meaningless.

I tend to agree but I would add…

  • You will be misunderstood and even blocked, for something which seems trivial
    It happens, people misread something or misunderstand the context and before you know it, the response is frosty or returned with a block. This also leads to ghosting…
  • You will be stood up
    Dates… where do I even start, I could do a enviable sublist about this alone. Its going to happen, you will be stood up and theres no point getting angry about it, its part of single dating life.
  • It will be attracted to somebody far away
    You edit your filters to only include people so far away and then somebody you think is local pops up in the search. Maybe they are visiting friends,  living locally for a short while or just about to leave the area. It will happen at some point, how you deal with it is the question.
  • You will come across women doing gang signs or men with their tops off in photos
    Self explanatory I think? Of course if you are a woman or a gay man, expect dick pics at some point too…

5 years ago, I was discharged from hospital

https://twitter.com/nevali/status/16415273538

Ah the end is just the beginning

GREAT NEWS!   Ian was discharged from the hospital this afternoon!  He is going to Bristol for a while to recouperate with his family and asks that people leave off contacting him directly for a bit as he’s got a month’s worth of email/messages to get through already and his phone is playing up at the moment.  He hopes to be back to his usual online presence soon, but for now just wants to relax and enjoy being ‘on the outside’.  As always, thanks for all your messages and kind words, and you are welcome to continue leaving messages in the guestbook here.

Ian and his mum have made a formal complaint to the hospital today, and Ian wrote the following about his experience last night around 10pm:

Yes 5 years ago I was discharged from Salford Hope hospital. It was quite a ordeal the last part of my recover in the hospital. I would say this is where things went wrong, as you can read in my complaint.

The first thing I did when I left?

My mortgage adviser (Billie) came to my flat with the papers to sign. She was amazing and honestly without her persistence, I most likely would have lost my great apartment at Islington Wharf.

Then I slept and disappeared down to my parents place for a week!

Of course my thank you  and thank you 2 posts capture my state/thoughts of amazement living through something most don’t. No need to do a bad version of timehop anymore.

I’ll be celebrating with friends and family this weekend… Thank you everybody! These two tweets really got me…

Oh and I had a totally surprise to see my my email I sent (I forgot many things around that time) to the UK Wired after seeing their top 100 UK people earlier in the year.

https://twitter.com/ThinkingDigital/status/15913986406

Japanese culture conflicted

Ariana Miyamoto Eletta Miss Giappone Ma Scoppia La Polemica Perchè Di Colore "Non è pura

From the BBC

With a Japanese mother and African American father, Ariana Miyamoto has become the first bi-racial woman to be crowned Miss Japan.

The question of whether a person of mixed race should be eligible to win the competition has since provoked a heated argument on social media,

Oh I can so believe the kind of comments Ariana is getting. Japanese culture is so future focused in some things and ever so in the past for others. I understand the history of Japan, but I can’t help but say its 2015!

I honestly can’t imagine how bad the Japanese view on mix race relationships…  Hopefully this will start to sway things.

5 years ago, The best Hello world message

While on the mend, I finally wrote my first blog to the world via dictation to my family. I remember saying the words with tears in my eyes. Of course it had to be Hello World, as there was nothing more fitting. The joke about hospital food was my injection of humour, although I have to say the hospital kitchen/restaurant really looked after me while I was there. I was given quite plain food but they kept checking about my allergies all the time. Actually far more than the doctors (as you will see in the next week)

It was great being able to talk again although I still have the trach scar, which will never go away now. I couldn’t explain how much the cards and comments meant to me and my family. I was kind of overwhelmed to know I had touched so many peoples lives and they in turned felt it was worth reaching back.

I was looking forward to moving out of ICU because this about the time when I started really getting better really fast. It was like my body was just repairing its self at a rate the hospital had never seen before. Amazing when you consider the life expectancy of people who have bleed on the brain

If subarachnoid hemorrhage from aneurysm, about 50% die within the first few days in hospital. If intracranial bleed, with/without stroke, the death rate within year one approaches 60%. Figures have remained constant for years.

I am one of the very few lucky ones and believe me don’t I know it, and there is no way I will forget it


 

[Message below was dictated by Ian this evening, no internet connection in hospital]

Ian says:

‘Hello world!  Thank you very much for taking the time to find out how I am doing.  I am doing okay.  I am still in hospital, but making a positive recovery.  Thank you to everybody who has written to me and my family and thanks for writing such amazing things.

The trach tube is out and I can speak again.  The feeding tube is also out.  I had solid food for the first time yesterday–it was horrible!  Of course it was hospital food.

Thank you for all the messages to my family.  I’m on the way to recovery.’

[Ian is due to be moved out of ICU and on to the ward as soon as a bed becomes available.]


Ian is continuing to do well and they are hoping to move him out of ICU and on to the ward soon (possibly this weekend).  He was a bit tired today and slept more, but he did spend most of yesterday out of bed and sitting up.

Ian’s flatmate Tim brought his laptop in for him, but there is not a wireless connection to use so Ian will not be online yet.

Unfortunately Ian missed some visitors today because he was sleeping.  For anyone else who is visiting, please be aware you might not get to see him if he is tired, but we do appreciate you coming to visit!

They hope to put some sort of valve into the trach tube that will make it possible for Ian to speak, but I am not sure when they’ll do this.


At the moment Ian is still in the ICU.  They had thought they were going to move him to the H.D. unit, but there wasn’t a bed available, so for now the plan is for him to stay in ICU until he is ready to move to the ward.

Ian is ready to have visitors now, but in ICU this is limited to two people at a time.  If you want to come visit, please leave a message in the guestbook letting us know what day and time you plan to come (and please leave a contact number in case we need to reach you).  Visiting hours are from 1pm-9pm daily.  They are quite strict about what can be brought into the ICU due to infection control.

Ian still cannot talk due to the trach tube so it can be difficult to communicate with him.  He is finding it frustrating, but appreciates visitors coming as he is getting bored.

5 years ago, while I learned to speak again

Ward at Alpha Hospital

Its the June 2nd and its about the time I could barely talk (due to a trach) but my memory was less hazy and I can remember much more. My sister tried to create a communication board, so I could communicate without saying the word. It was pretty frustrating and too be fair i did tell her. I did feel bad about it, as she really trying to help. I remember writing, this is stupid and there has to be a better way… Luckily I didn’t need to wait long before I could talk again.

Ross and Carly came and saw me a few times and certainly helped with the healing process, by making me laugh and cough a lot. I think I remember Adrian seeing me at one point too, he gave me the printed information on Google IO 2010 and the much talked about Google TV.

This about the time when I started going a little stir crazy, as it was ICU, you were not allowed to plug anything into the wall.  My saving grace was my old kindle full with ebooks which I meant to read at some point. I also had enough of the woman next to me with her kicking action to get attention. I must have read about 10 or so books while I was in ICU, unfortunately lights out was 8pm and I didn’t have the paperwhite kindle at the time.

My parents did offer to bring my laptop but I originally said no (believe it or not!). They did bring my pacemaker which I had a hard time re-learning in the first hour but gave rise to a number of mixes later.

Not being able to get out of bed was a real pain, even when I could actually stand. The nurses wouldn’t let me go to the toilet alone and it wasn’t till I pretty much pleaded with a male night nurse to please let me use the normal toilet so I could have some privacy. I finally was happy again. Privacy is something while going to the loo is something I certainly like and the doctors did wonder if my body was operating correctly.

Hospital food is pretty bad but try having complan as your main supply of food, by this point I only had to survive a day or two on it before than it was via the drip in my nose. Food via a drip was weird and interesting especially when you are fully aware of whats actually happening.

The last thing I certainly do remember is the injections of  Anticoagulants better known as Warfarin. It was either have it in the arm or in the stomach. Don’t ask me why remember I hadn’t had hypontherapy yet, but I decided the stomach was best because I couldn’t move it and have it scratch and theres quite a bit of fatty tissue… It was painful but honestly it wasn’t as bad as in the arm. Having every day got me slightly use to it but any chance I could avoid it, I did. Unfortunately it would only work for a short while before they would hunt me down for another fix!

Mum and Dad kept writing blog posts on carringbridge thanks to Sarah and Sharon.


 

Ian had a very good day today!  He was able to stand for the nurses and was out of bed sitting in a chair for most of the day.  He was smiling a lot and laughing at jokes (which is helping to clear his chest).His breathing is continuing to improve and we hope the trach tube will be removed soon so he’ll be able to speak.

Hi everyone,Ian is progressing well.  He is breathing with very little help now.  They are thinking of transferring him out from ICU to a High Dependency Unit tomorrow.

Ian’s dad, sister and I have been back in Manchester with him since yesterday afternoon.The trach tube had to be resited and Ian is still having some ventilation through that just until his breathing improves.  They are reducing use of it and he is mostly breathing on his own.Ian’s sister has been reading him messages from the guestbook which are much appreciated.  However, at the moment we would still like visitors to be limited to family.  Ian is having ups and downs in his recovery, but on the whole is improving.  We want to make sure he rests and does not get frustrated with not being able to speak (this is temporary due to the trach tube).   He is communicating with us by blinking, nodding and occasionally writing, and he does understand everything that is going on.

Ian’s ventilator was removed again this morning.  To avoid having the ventilator back in, he has had a tracheotomy to help him breathe.  This is just a temporary measure until his breathing is stabilised.  The drain has been removed from his head, so now it is just the feeding tube in his nose.He indicated he was in pain due to having the tracheotomy, so he has had some medication to help with that.I have travelled to Bristol this evening, but will drive back to Manchester with Ian’s dad on Saturday morning.  Ian’s sister will also be back up to see him on Saturday.More cards arrived for Ian today and they are all being stuck up to the wall near his bed.  Thanks to everyone for all the get well messages.